So just a bit of background; my name is Jessica and I have Crohns, I work a full time fast food job, currently about 2 months post op and still in a flare. On top of trying to manage the disease itself and re navigate my diet once again, I've also been having a lot more joint pain and just feeling physically wrecked. And the level of how demanding my job is just varies day to day. So there are days when I can get by and others like today my legs were jsut about giving out completely, already limping a couple hours into my shift and just being too exhausted to deal with anything else once I'm home. And so when I go to my gastro doctor's office they have you fill out a sheet that basically tracks your symptoms. And I have checked the ones I've been feeling progressing and my GI kinda just doesn't talk about it or suggest any remedies or referrals. And when I ask questions she kinda just does the whole "oh well we'll check back with that in a couple months at your next app"
So I honestly just annoyed and looking for some support & suggestions from anybody else on the younger scale who has similar problems or patients of any age honestly that have dealt with these kind of symptoms. I'm just honesty already getting to the point where I ask that ever daunting question of "how the hell am I supposed to survive like this throughout the remainder of my life. And yes I know I'm incredibly young to be worrying about that and I know its rather grim outlook form someone so young but Its a reality for not only me but I'm sure a lot of us out there. So definitely any kind of suggestions/input would be tremendously appreciated.
So I honestly just annoyed and looking for some support & suggestions from anybody else on the younger scale who has similar problems or patients of any age honestly that have dealt with these kind of symptoms. I'm just honesty already getting to the point where I ask that ever daunting question of "how the hell am I supposed to survive like this throughout the remainder of my life. And yes I know I'm incredibly young to be worrying about that and I know its rather grim outlook form someone so young but Its a reality for not only me but I'm sure a lot of us out there. So definitely any kind of suggestions/input would be tremendously appreciated.
And well I'm only a couple months post-op from my recent resection, and at the time I had been caught in a full blown flare, now I'm back to my normal work hours( average 45 hours) and it is a very physical fast paced job unfortunately so I do find my myself worn out from that and just been having a lot of stress lately. My symptoms are still going strong and getting a bit out of hand, but I am on Mercaptopurine and starting first dose of Humira in a couple days. SO I'm really hoping the Humira makes a difference. Its kinda like I'm really trying to wait it out and be good with my diet and hoping I'll fall back into remission soon but Its starting to get fairly frustrating.