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Advice appreciated please

L

Lydiagrace93

Hi everyone :). I'm new to this group. I was wondering if anyone could help me. Back in Dec/Jan I had severe diarrhoea. I couldn't eat a bite of food without running to the toilet several times, was going in my sleep and everything. I had a calprotectin test of more than 2300. I had this for about six weeks and my symptoms slowly improved and went. I had a colonoscopy which came back fine. I got my MRI results the other day which showed in my terminal ileum there was fluid inflammation and thickening of the wall. However that wasn't enough evidence
 
L

Lydiagrace93

It wouldn't let me keep typing. There wasn't enough evidence to diagnose anything so I'm waiting for my pillcam results. When I had the colonocopy he got a bit into the terminal ileum and did a biopsy which came back clear. I'm so confused. Anyone had anything similar. Thanks
 
ronroush7

ronroush7

Welcome. I am not experienced but i would keep fighting until you can get some answers from the doctor. You know your body better than anyone else . Let us know how you are. Support and prayers sent your way.
 
Lynda Lynda

Lynda Lynda

Member
My calprotectin level recently was 694. Had the colonoscopy / endoscopy. I may have something similar to you ? Part of my results say "Additional Findings" : Unable to successfully cannulate terminal ileum; appeared to be an inflamed stricture; only able to see a small lumen. Mucosa not evaluated.

My blood draw results are not back yet. And my CT Scan is scheduled for April 21st.

My follow up appointment isn't until May 19 !

Sending you my support.:heart:
 
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