I haven't been here in a while, but I wanted to let you know about my diagnosis, as it might possibly be an answer for someone here too. I have had significant gastrointestinal problems all my life. I missed the last month of kindergarten; I was hospitalized in high school; I had to leave my job in Arizona. And yet, doctors could never figure out what was wrong. This summer, one of my other specialists referred me to another gastroenterologist. I didn't expect a lot, as my previous experiences had been unfruitful at best, but after reviewing my records and talking with me, this doctor immediately told me that she suspected some condition causing malabsorption and ordered tests to check her theory. The abnormal test results showed she was correct so she decided to proceed with a small intestinal biopsy, and taking into account my symptoms since childhood, ordered a special test on the biopsies. Two weeks ago, I was diagnosed with a rare, genetic condition, in which my body does not produce enough enzymes to digest most foods. It's called Congenital Sucrase-Isomaltase Deficiency (CSID), and I fall into the subset of those who also are deficient in lactase (meaning, lactose intolerant). (Oh, and I also have gastritis and esophagitis.) Anyways, I don't know if most people who find out that they have an incurable, genetic condition are happy, but for me, this is very hopeful. I will have to be on a very strict diet and take medication 5x a day for the rest of my life, but I'm cautiously optimistic that this could lead to positive health changes for me. If you want to know more, this is an excellent site: http://csidcares.org/ I would like to spread awareness about the condition so that it doesn't take others three decades to be diagnosed. I am the first person my gastroenterologist has diagnosed with CSID, and none of my other doctors have ever treated anyone with it. It might take patients learning about it and asking to be tested, if they think their symptoms fit.