Hi, I’m new to this forum (any forum actually).
My story shortened is - Diagnosed 2013 and had an emergency resection. Due to the parts taken I now have severe bile salt malabsorption.
I’m on colesevelam (6-8 a day) and Loperamide (6-8) a day. But I am still getting flares every couple of weeks. This particular flare has lasted 3 weeks and I’m going to the toilet up to 15/20 times a day.
I have a one year old and I’m absolutely exhausted and feel as though I can’t risk going out the house and I definitely can’t work until I’m back on track.
Has anyone on here requested (I’m thinking about begging) for a bag?
I know a lot of the cons but I haven’t had a good quality of life for over three years and it seems to have worsened.
All I want is to be able to take my daughter to a park without having to rush off and have major anxiety about not wanting to have an accident (which happens so frequently).
I don’t want to go to my gastro and be laughed out the room and be put on more medication which I just know won’t work, then be back to this same stage in a years time.
Any advise would be appreciated.
My story shortened is - Diagnosed 2013 and had an emergency resection. Due to the parts taken I now have severe bile salt malabsorption.
I’m on colesevelam (6-8 a day) and Loperamide (6-8) a day. But I am still getting flares every couple of weeks. This particular flare has lasted 3 weeks and I’m going to the toilet up to 15/20 times a day.
I have a one year old and I’m absolutely exhausted and feel as though I can’t risk going out the house and I definitely can’t work until I’m back on track.
Has anyone on here requested (I’m thinking about begging) for a bag?
I know a lot of the cons but I haven’t had a good quality of life for over three years and it seems to have worsened.
All I want is to be able to take my daughter to a park without having to rush off and have major anxiety about not wanting to have an accident (which happens so frequently).
I don’t want to go to my gastro and be laughed out the room and be put on more medication which I just know won’t work, then be back to this same stage in a years time.
Any advise would be appreciated.