Hi,
After the initial 3 rounds of infliximab my calprotectin level has doubled (no where near as bad as previous counts but I didn't expect it to raise from my pre treatment baseline)
But the issue I'm more concerned about is after my first treatment I had terrible pins and needles, they decided to go ahead with the second dose and i didn't have pins and needles between 2nd and 3rd infusions but a week or so after the 3rd the pins and needles came back and 6 weeks on were constant, my feet and arms keep feeling like they are wet/cold or on fire.
Needless to say my 4th infusion was cancelled and I'm now to see a neurologist/get an MRI - I've had no feedback from my GI consultant and I'm at a bit of a loss as to what iss going on.
Other symptoms are problems with my eyesight (eyes fine though just had a vision check so other than new glasses all ok) and I've got chronic fatigue and a bit of dizziness.
Just wondered if anyone else on infliximab had similar symptoms and what the outcome was - i.e. what's next if infliximab doesn't sort out the inflammation?
Sorry for essay - first ever post and I've had Crohns for 20 years!
After the initial 3 rounds of infliximab my calprotectin level has doubled (no where near as bad as previous counts but I didn't expect it to raise from my pre treatment baseline)
But the issue I'm more concerned about is after my first treatment I had terrible pins and needles, they decided to go ahead with the second dose and i didn't have pins and needles between 2nd and 3rd infusions but a week or so after the 3rd the pins and needles came back and 6 weeks on were constant, my feet and arms keep feeling like they are wet/cold or on fire.
Needless to say my 4th infusion was cancelled and I'm now to see a neurologist/get an MRI - I've had no feedback from my GI consultant and I'm at a bit of a loss as to what iss going on.
Other symptoms are problems with my eyesight (eyes fine though just had a vision check so other than new glasses all ok) and I've got chronic fatigue and a bit of dizziness.
Just wondered if anyone else on infliximab had similar symptoms and what the outcome was - i.e. what's next if infliximab doesn't sort out the inflammation?
Sorry for essay - first ever post and I've had Crohns for 20 years!