I'm looking for opinions or maybe similar frustrations?
I am a 28yo female. I have had Crohn's for 15 years. The disease hasn't been very well controlled until this last year. Colonoscopy 16 mo ago finally showed NED. Unfortunately over a little less than a year my joint pain has slowly increased and progressed to muscle pain, headaches, fatigue etc. I saw rheumatology about 9 mo ago. Labs and X-rays were negative. Sulfasalazine was started but stopped quickly due to side effects. They said they couldn't do much more so GI has pretty much just had me on tramadol ever since. They did check my remicade levels and antibodies levels and that was all good.
Fast forward to now I did enough fussing and advocating for myself and got a referral to a different rheumatologist in town. I feel like she basically wrote me off and said I have fibromyalgia. I guess I'm not buying it. I feel like it's a cop out.
Has anyone had similar issues with their crohn's? Any ideas what else this could be?
I am a 28yo female. I have had Crohn's for 15 years. The disease hasn't been very well controlled until this last year. Colonoscopy 16 mo ago finally showed NED. Unfortunately over a little less than a year my joint pain has slowly increased and progressed to muscle pain, headaches, fatigue etc. I saw rheumatology about 9 mo ago. Labs and X-rays were negative. Sulfasalazine was started but stopped quickly due to side effects. They said they couldn't do much more so GI has pretty much just had me on tramadol ever since. They did check my remicade levels and antibodies levels and that was all good.
Fast forward to now I did enough fussing and advocating for myself and got a referral to a different rheumatologist in town. I feel like she basically wrote me off and said I have fibromyalgia. I guess I'm not buying it. I feel like it's a cop out.
Has anyone had similar issues with their crohn's? Any ideas what else this could be?