Hello everyone, I was recently diagnosed with severe Ulcerative Colitis. My first flare started in early September 2017. Im a 34 year old male. I lost 21 pounds in the first 2 weeks. I now weigh only 140. I weighed more in high school. I'm still in a bad active flare. I'm desperate for help. I saw my doctor again today. She said I need infusions of Remicade (which I can't afford) because my UC is so severe, and Lialda only treats moderate to mild UC. My active flare has lasted about a month and a half.
Please help me. How do I get this disease under control?
My GI doctor has me on Lialda 4 pills once daily and Prednisone 40mg once daily. I have been on Lialda for a few weeks and Prednisone for 2 days. I just started taking vitamin D. Lialda helped mask the symptoms some for only about a week and a half.
Now I can't sleep and my frequency of diarrhea has increased to as often a every 15-20 minutes. Occasionally its every hour when I am lucky. I wake up many times all through the night because of the frequent diarrhea. If I do get sleep its segmented and isn't enough to help the healing process of my colon.
I'm following doctors orders with my no/very low fiber and low residue diet. I'm also taking probiotics once daily, staying away from sugary foods, low sugar yogurt, drinking plenty of water to stay hydrated. Even though I am following the special diet very closely it doesn't seem to be helping me get into remission. I eat several small meals throughout the day as recommended. I have tried peppermint oil mixed in water, peppermint tea, and ginger tea. I'm planning on getting a juicer next because I feel at this point I need more nutrients than my diet is allowing and my body isn't absorbing.
This disease has completely taken over my life. I am prisoner to the toilet. My anxiety, stress, and depression are at an all time high. I have had suicidal thoughts almost every day. How can I avoid stress when this disease causes tons of it.
I am at a loss as to how you guys and gals have managed to continue living your lives and functioning so well with this disease for so many years. I'm not so strong. I feel completely defeated and doomed. I see no chance in my recovery even to a remission state because nothing is truly working.
Please help me. How do I get this disease under control?
My GI doctor has me on Lialda 4 pills once daily and Prednisone 40mg once daily. I have been on Lialda for a few weeks and Prednisone for 2 days. I just started taking vitamin D. Lialda helped mask the symptoms some for only about a week and a half.
Now I can't sleep and my frequency of diarrhea has increased to as often a every 15-20 minutes. Occasionally its every hour when I am lucky. I wake up many times all through the night because of the frequent diarrhea. If I do get sleep its segmented and isn't enough to help the healing process of my colon.
I'm following doctors orders with my no/very low fiber and low residue diet. I'm also taking probiotics once daily, staying away from sugary foods, low sugar yogurt, drinking plenty of water to stay hydrated. Even though I am following the special diet very closely it doesn't seem to be helping me get into remission. I eat several small meals throughout the day as recommended. I have tried peppermint oil mixed in water, peppermint tea, and ginger tea. I'm planning on getting a juicer next because I feel at this point I need more nutrients than my diet is allowing and my body isn't absorbing.
This disease has completely taken over my life. I am prisoner to the toilet. My anxiety, stress, and depression are at an all time high. I have had suicidal thoughts almost every day. How can I avoid stress when this disease causes tons of it.
I am at a loss as to how you guys and gals have managed to continue living your lives and functioning so well with this disease for so many years. I'm not so strong. I feel completely defeated and doomed. I see no chance in my recovery even to a remission state because nothing is truly working.