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RVF? How did they find yours?

For several months I’ve been having feces in my V area. I know I’m not imagining this. Happens all the time when I wipe and sometimes leaks out.


Just had a CT scan and I saw the report. Didn’t seem like they found anything. (Editing to say they did see wall thickening and inflammation-typical crohns stuff but nothing about a fistula)

From my research this isn’t always the best way? I feel like I’m going crazy. If they found a fistula they were going to start me on Remicade. Now I doubt they will. Should I ask for another test like an MRI? Advice please. I have a follow up in November. They haven’t called me about the CT results. I just read the report on the hospital website.
 
Mine showed up on an MRI. It must have been small, because I mostly had air coming out of it. Once I got on Remicade, it closed. I hope you get approval quickly.
 

Lisa

Adminstrator
Staff member
Location
New York, USA
Mine were confirmed via barium imaging...wasn't a fun procedure, but definitely showed where things were coming out from places they weren't supposed to!!

I would ask about having that done.....
 
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