- Location
- Southern British Columbia
I hope you feel better soon Ron.
Feeling better today. Thanks, cmack.I hope you feel better soon Ron.
Thank You for replying to my text. You are always here when someone needs you. The kindness of one of my neighbors made me realize that there are good people in this world. No, I have no interest in reconciling with my sister, I tried my best to explain my health situation to her but she still wanted to speak to my Family Nurse Practitioner at my Gastroenterologists office ! I have had UC for 20 years. I am so terribly hurt by my sister for not being there for me. But I had some luck today with help from my Gastroenterologists office, I have contacted a local Care Givers organization referred to me by my Gastroenterologists office. I have made arrangements with this organimation for them to drive me to my colonoscopy, stay in the lobby during my procedure and drive me home. It cost $30 an hour, but I have no other options. It is comforting to know that the gracious folks of Sun City, Arizona have many organizations to help out the elderly folk who live there and for people like me too. ( Sun City, AZ is a city here, a retirement community here for folks 55 years and older which caters in every way to the seniors living there......it is called City of Volunteers. )Lynda, i am sorry for what has happened between you and your sister. I hope that you and her can work ot out. I also hope you can make it to your cokonoscopy. That wss sweet of your neighbor that she made the offer.
I used care giver organizations for awhile in Yakima it was really convenient. Definitely go to the support group there is so much you can learn and help each other. Breaks my heart about your sister, I cannot imagine life without mine. But you can get other "sisters" through a group or friends. It's amazing how many people have intestinal issues and can relate on some level. Washington is a bit far or I would have drove you. Take care.Thank You for replying to my text. You are always here when someone needs you. The kindness of one of my neighbors made me realize that there are good people in this world. No, I have no interest in reconciling with my sister, I tried my best to explain my health situation to her but she still wanted to speak to my Family Nurse Practitioner at my Gastroenterologists office ! I have had UC for 20 years. I am so terribly hurt by my sister for not being there for me. But I had some luck today with help from my Gastroenterologists office, I have contacted a local Care Givers organization referred to me by my Gastroenterologists office. I have made arrangements with this organimation for them to drive me to my colonoscopy, stay in the lobby during my procedure and drive me home. It cost $30 an hour, but I have no other options. It is comforting to know that the gracious folks of Sun City, Arizona have many organizations to help out the elderly folk who live there and for people like me too. ( Sun City, AZ is a city here, a retirement community here for folks 55 years and older which caters in every way to the seniors living there......it is called City of Volunteers. )
I think I am calmed down now and happy to find a resolution to my transportation problems. Now I can relax.....and drive to the store to buy more Jello !
You are a very nice person.I'm glad you two are keeping in touch Lynda, maybe she will come around. I always try to think of five things I'm grateful for before I get too upset. You sound like you do it too, I think it helps me.
Sorry. Please know that you can come here at any time and know that you will find support.Hi! I'm new here but have been sick with Crohn for over ten years now.
I'm in desperate need of support because this is just getting way too much for me. This disease has ruined my life and now it appears I have a fistula from my bowel to my vag and it has propably been the cause for many problems for YEARS now. Sooo many infections and antibiotics.
I have been to a specialist to take a proper look but although my gastroenterologist sent me there, they didn't take it seriously and didn't even do it properly. I'm SO F*CKING MAD ABOUT THIS SH*T.
I don't have anyone to talk about this, I'm afraid my friends are just going to throw up on me if I tell them about this nasty sh*t. Please help, please just say something :''(
It's so important to vent and some friends will understand and some wont. The title waves of this disease bite for sure. There are times between the storms cling to those times and hold you through the rough times. Research everything, new treatments out there all of the time. I'm freaking about my trip to Europe and finding toilets and making sure I have the money and tp for the toilets at all times right now.Hi! I'm new here but have been sick with Crohn for over ten years now.
I'm in desperate need of support because this is just getting way too much for me. This disease has ruined my life and now it appears I have a fistula from my bowel to my vag and it has propably been the cause for many problems for YEARS now. Sooo many infections and antibiotics.
I have been to a specialist to take a proper look but although my gastroenterologist sent me there, they didn't take it seriously and didn't even do it properly. I'm SO F*CKING MAD ABOUT THIS SH*T.
I don't have anyone to talk about this, I'm afraid my friends are just going to throw up on me if I tell them about this nasty sh*t. Please help, please just say something :''(
I’m not just so fed up with crohns((I’m sure I have it far easier than most) but I’m just fed up in general. I wish life was kinder... I wish I know why god chooses for some people to have health issues and not others. I can try to tell myself on a regular basis that he has a purpose for everything but that doesn’t always work. It’s definately not working right now.
I wish someone could just tell me what’s the purpose for all this suffering!
Ron. I dont know.Is the color pink bad when you go to the bathroom?
I have always been able to consume massive amounts of sugary food and still have an acceptable glucose level. Sugar had never bothered my digestive system, but healthy things like fruits and vegetables made me sick because of my UC ( so wierd, huh. ) Last year I was eating entire bags of marshmallows and stuff like Pop TartsIt will for sure Lynda. To be able to give each other ideas on what to do to help with pain or diet means a lot.
I would call and have a message passed along to your GI regarding the pink you saw, Ron. I wouldn't panic though, I hope it resolves soon, and on it's own. I get slightly pink bowel movements from eating beets sometimes, so it's possible food contributed to the color.Is the color pink bad when you go to the bathroom?
Thanks it’s encouraging when things actually get better it’s a slow process and I’ve been dealing with these issues for more than a year but all my doctors are extremely pleased with my progress so far.As for the specialist he’s booked solid so I’m on a wait list but It anybody cancels I could get an appointment at anytime.Tubes, I am so happy for you.
It is so nice to see results and feel better.
I hope your appointment with your specialist goes well.
Take Care.
Mean,unpleasant,combative people looking to fight and argue instead of helping eachother the whole point of a illness specific support group or just support groups in general in my opinion is get people that are going through similar things and to help & support eachother not bring stress and a negative atmosphere.Define "nasty people"
Yup...that's nasty...:ybatty:Mean,unpleasant,combative people looking to fight and argue instead of helping eachother the whole point of a illness specific support group or just support groups in general in my opinion is get people that are going through similar things and to help & support eachother not bring stress and a negative atmosphere.
I definitely feel that way too sometimes, then my doctor reminds me my blood work is better and markers are way better. Ginseng tea helps me a lot with energy. Also, my Tramodol for pain helps with my energy, but wow if I don't take either....what move from my recliner.....so much work.....seriously how can this so wipe you out....crazy.I just want to vent for a minute (and yes I know my GI doctor would not approve). I have been diagnosed with Crohn's for several years. Lately I have been trying to decide if the medicine they put me on is worse than the disease itself. I used to be able to run, workout, and enjoy life. Now the idea of walking around the block gives me a headache. The fatigue is awful and I still have pain regularly. My favorite is when the doctor says, "The medicine is doing as well as can be expected" as he tells me I now have 2 strictures instead of one (SMH). I read about people in remission and how whatever drug they take is a miracle. The medicine just makes new problems and it isn't a miracle for me. I just want my life back.
..i would like to present my bowel disease with a fake right, double left jab, headbutt...uppercut... Then a swift snap kick to the chin. That's just how i feel today... Peace...that felt good.
Hey me too, even just found my lavender boxing gloves in a box I was going though.I would like to present my bowel disease with a fake right, double left jab, headbutt...Uppercut... then a swift snap kick to the chin. That's just how I feel today... Peace...That felt good.
Pretty crappy the wound and vein that got stitched up are pretty big and in a bad spot so it’s uncomfortable 24/7 as the wafer of my bag is pressed and rubbing against them and the bag isn’t sticking well.Its hard to sleep seeing when I do I wake up to bleeding or accidents.I’m still waiting for test results and I’m in the process of finding a new wound specialist/stoma nurse as my current one has really dropped the ball and won’t get back to me.Its been fun all around.I'm in a state of emergency here in BC due to wildfires. Sorry I was not here sooner. How are you doing now? Give me a shout Tubes
This just confirmed why I'm glad I don't have any pets anymore WOW.No I’m not allergic he just sheds a ton especially in the summer and some of his hair got up my nose and tickled things just right that I couldn’t stop sneezing and I wasn’t able to brace myself because I woke up sneezing and I scared the crap out of him.He’s a jerk but I like him.
Early this year when I had all my surgeries he was fascinated with all the tubes hanging from me be it from the urine bag or the bag from the drainage from the rectum removal so I had to avoid him and make sure the door to my room stayed shut while I rested but whenever someone would check on me he’d sneak in wait for me to fall back asleep and he’d sleep on my lap and stomach and I’d wake up to him clawing at or chewing the tubes.As I said he’s a huge jerk.
He gets in everything you don’t want him to.What was worse was when i originally had my total colectomy I had a really sweet dog she was a Doberman/German Shepherd mix she was over 150lbs all muscle she was sleeping when I 1st got home from the hospital I took a nap and my mom woke me up to take my antibiotics when my dog heard my voice she got all excited jumped over the gate and leaped on my stomach it was unpleasant.I don’t have a dog anymore.This just confirmed why I'm glad I don't have any pets anymore WOW.
A yipper for sure huh. That's why I loved my Wolf/Malamute, he only did that low growl and that was almost never so I way alerted when he did that, he lived to 15. Yep still miss him and he passed in 2000.Kind of like other peoples kids... fun for a while when you have the gumption. Really great when you can give em back too. You have my support Tubes. I miss my old girl too. Pomeranian and Terrier mixed with a little Coyote... Lived to 16-17...you can imagine all the noise...
I just read this because I haven't been around recently. but I wanted to say....GOOD FOR YOU !! I found my "inner bitch" this year and after doing so I felt so empowered and I became a better advocate for myself.Thanks cmack.I’ve had issues with Doctors within the last year and it’s partly my fault because I’m so easy going and nice to a fault so a lot of times people take advantage of that but I’m quickly learning that I can be a huge dick when the situation dictates because when I’m nice the doctors don’t get back to me but when I’m a dick they immediately get back to me and that’s a terrible message to send but when the doctors don’t get back to me I’m the one that suffers.
I used to use the library computers too when I didn't have one, if you have one near by just a thought.Well, I took a two month break but now I want to read more posts to learn more, as I am in a different stage in my "recovery". Dont know if recovery is the right word.
I am on 6mp and Humira and VSL#3.
Anyhow, I have a computer but no internet in my apartment. I cancelled it because of the cost. All my reading and writing here are done on my phone and the print is small and I can't "type" fast.
I am planning on going to the Clubhouse at my apartment complex way more often so that I can use their free wi-fi. Actually they have chairs and a sofa, just like a living room would have. I have to admit those chairs are more comfortable than my old recliner. I can read posts on my computer screen and actually have a keyboard to type with. It will be easier on my eyeballs. There is a small workout room there too, so a treadmill would be a great thing for me to start walking on ( outside temps are over °100 every day. ) And I would be getting away from my apartment more often. My rent money is paying for this Clubhouse, so I should use it !! Another plus, there is bathroom in the Clubhouse. I always gotta make sure one of those is around.
Take Care.