Hi there,
this is my first time on this forum. I was diagnosed with Crohns back in 2005, fast forward to last week which is when my 14 year old son came out of theatre with an NG tube. My heart dropped and I had so much guilt for my child. When the paediatric consultant came to speak to us and said it’s Crohns this is where I blurted out that “It’s my fault isn’t itI?!” He goes on to say that it is just bad luck and Crohns isn’t genetic. Lies. I’m thinking to myself. He’s saying that to make me feel better.
Aaron is now on Modulen. In my time working in Pharmacy, I have never heard nor seen it before. I looked it up and it says that it is an anti inflammatory meal replacement etc etc. the following day we’re up at sick kids and I ask the GI nurse, what makes it an anti inflammatory shake? She says it’s a very good question but she doesn’t know, supposedly a lot of doctors don’t know the active ingredient that makes it specifically used for Crohns.
While I was waiting to be accepted on this forum I read that someone called it a life saver. I would love to hear more success stories so I can pass it on to my son. My son loves food but it doesn’t like him, going without his favourite food and when it’s his 15th next week he can’t celebrate. The next 7 weeks is going to be horrendous.
Any advice will be lovely
Many thanks Jes x
this is my first time on this forum. I was diagnosed with Crohns back in 2005, fast forward to last week which is when my 14 year old son came out of theatre with an NG tube. My heart dropped and I had so much guilt for my child. When the paediatric consultant came to speak to us and said it’s Crohns this is where I blurted out that “It’s my fault isn’t itI?!” He goes on to say that it is just bad luck and Crohns isn’t genetic. Lies. I’m thinking to myself. He’s saying that to make me feel better.
Aaron is now on Modulen. In my time working in Pharmacy, I have never heard nor seen it before. I looked it up and it says that it is an anti inflammatory meal replacement etc etc. the following day we’re up at sick kids and I ask the GI nurse, what makes it an anti inflammatory shake? She says it’s a very good question but she doesn’t know, supposedly a lot of doctors don’t know the active ingredient that makes it specifically used for Crohns.
While I was waiting to be accepted on this forum I read that someone called it a life saver. I would love to hear more success stories so I can pass it on to my son. My son loves food but it doesn’t like him, going without his favourite food and when it’s his 15th next week he can’t celebrate. The next 7 weeks is going to be horrendous.
Any advice will be lovely
Many thanks Jes x