I am a 40 year old woman in BC, was healthy my entire life and last January a dentist prescribed a powerful anti-biotic to fight my infection, After taking just 2 pills I began passing blood through diahria and vomitting blood. I saw my Doctor and was given Nexium and it stopped quickly, I was okay.
In March I began getting labour pains, I new I wasn't pregnat so I thought I had food poisoning, I'd eaten a turkey sandwich at a restuarant so it was that, I decided.
For a couple of weeks I was fine, so I got a new job that I liked a lot and mid April began having violent pains at work, my husband picked me up at work one day and drove me to the hospital. There I had a CT scan and was referred to a GI, he then sent me for some other tests and told me I had Chrons or Cancer, I hated him. The worse part was his non chalant attitude and made me appointments that were months away. So I thought, how serious could this be if he's making me wait right?
The pain increased every day, I left my job, I couldn't even get in the car. I couldn't leave the house. Then I began throwing up everything I ate and couldn't even hold down a glass of water down. I lost 25 lbs in a few weeks.
In May and June I was house bound except for Doctor Visits and if I so much as walked for more then a few minutes at a time I got dizzy and all the while the pain was overwhelming, it was like being in steady labour for 3 months.
A month ago, July 5th 2011, I woke up vomitting diahria, this was the most disgusting and horrifying experience of my life, I would have killed myself if I didn't have a son and husband, my mother drove me to the hospital in her van because I couldn't get into our car, the doctors at the hospital gave me another CT scan and a surgeon told me he was cancelling his other surgeries because I was about to die soon, I was going to POP, my intestine was blocked and dialating at a dangerous size, I panicked I almost ran away, I was terrifed, surgery terrified me, that night they removed 7 or 9 inches of my lower intestine and the next day I was parylized in bed and given morphine, I needed it every 10 min the pain was so bad, I had lost 25 lbs and no muscle or body fat left, I couldn't even sit up on my own because I was as weak as a rag.
My husband stayed with me all night in the hospital some nights and my Mom did the other nights, they would help me get out of bed to go the bathroom, Put my slippers on for me, I couldn't reach anything. I had to make myself walk and every step hurt like I was climbing a mountian, LOL
A week later I was mobile again and ate and finally got to come home, I went to see my doctor and she explained that the biopsy showed Chrons disease, (they'd sent the peice they removed to the lab) The surgeon told me before the operation that if I'd waited for the last test scheduled July 27th I would have died before I got it, also the test itself, inserting gas and a camera into my gut would have blown up my intestine and killed me.
So now I have an appointment with a different GI doctor and for thew last 4 days, no pain no swelling in my feet, I feel normal again, haven't felt like this since March, it now August.
I don't know what to eat, I eat mashed potaoes and things like that, fish and chicken, canned vegetables because they're soft. I eat chese because it doesn;t seem to hurt, at leat not right now. I have 1 coffee every morning, I used to drink 4-6 cups everyday so I can't give it up completely.
I'm scared it happens again one day, I've heard that people have had surgery again, I don't want to do that again, I haven't had a glass of wine since April, I'm weating a patch and stopped smoking, I'm on anti-biotics, they said I'll need them for 3 months, but then what? Will it come back? Will it be okay?
I just don't know. Everytime I ask about diet I hear that its different for everyone, and I don't know if what I'm eating is bad because I'm taking anti-biotics right now so am I okay or is it the anti-biotics masking my reactions?
I have had diahria everyday since the surgery, every time I eat its a trip to the bathroom a few minutes later, whether I eat or not too, The scarey times are when I get constipated becase thers always this fear that the connection might break, okay maybe that's paranoia, but I'm scared, anyone else had the bowel resection and noit scared anymore? Please let me know. Is this feeling okay now going to last or am I kidding myself?
they said it was successful, and looked good the bowel that's left, could it have been only one area diseased and the rest healthy? Anyone been like that, okay now? Please give me any advice you have, I could use some from a Chrons patient, I've been talking to people that have never had Chrons so its hard to understand. They don't know what warning sign feels like.
This is all new for me, all I know is I was healthy one day and got hit with the worse illness just like that! Then I almost dies because my GI made me think I had so much time to wait in between tests, my husband cried that night, I never saw that before, I don't want to see that again.
In March I began getting labour pains, I new I wasn't pregnat so I thought I had food poisoning, I'd eaten a turkey sandwich at a restuarant so it was that, I decided.
For a couple of weeks I was fine, so I got a new job that I liked a lot and mid April began having violent pains at work, my husband picked me up at work one day and drove me to the hospital. There I had a CT scan and was referred to a GI, he then sent me for some other tests and told me I had Chrons or Cancer, I hated him. The worse part was his non chalant attitude and made me appointments that were months away. So I thought, how serious could this be if he's making me wait right?
The pain increased every day, I left my job, I couldn't even get in the car. I couldn't leave the house. Then I began throwing up everything I ate and couldn't even hold down a glass of water down. I lost 25 lbs in a few weeks.
In May and June I was house bound except for Doctor Visits and if I so much as walked for more then a few minutes at a time I got dizzy and all the while the pain was overwhelming, it was like being in steady labour for 3 months.
A month ago, July 5th 2011, I woke up vomitting diahria, this was the most disgusting and horrifying experience of my life, I would have killed myself if I didn't have a son and husband, my mother drove me to the hospital in her van because I couldn't get into our car, the doctors at the hospital gave me another CT scan and a surgeon told me he was cancelling his other surgeries because I was about to die soon, I was going to POP, my intestine was blocked and dialating at a dangerous size, I panicked I almost ran away, I was terrifed, surgery terrified me, that night they removed 7 or 9 inches of my lower intestine and the next day I was parylized in bed and given morphine, I needed it every 10 min the pain was so bad, I had lost 25 lbs and no muscle or body fat left, I couldn't even sit up on my own because I was as weak as a rag.
My husband stayed with me all night in the hospital some nights and my Mom did the other nights, they would help me get out of bed to go the bathroom, Put my slippers on for me, I couldn't reach anything. I had to make myself walk and every step hurt like I was climbing a mountian, LOL
A week later I was mobile again and ate and finally got to come home, I went to see my doctor and she explained that the biopsy showed Chrons disease, (they'd sent the peice they removed to the lab) The surgeon told me before the operation that if I'd waited for the last test scheduled July 27th I would have died before I got it, also the test itself, inserting gas and a camera into my gut would have blown up my intestine and killed me.
So now I have an appointment with a different GI doctor and for thew last 4 days, no pain no swelling in my feet, I feel normal again, haven't felt like this since March, it now August.
I don't know what to eat, I eat mashed potaoes and things like that, fish and chicken, canned vegetables because they're soft. I eat chese because it doesn;t seem to hurt, at leat not right now. I have 1 coffee every morning, I used to drink 4-6 cups everyday so I can't give it up completely.
I'm scared it happens again one day, I've heard that people have had surgery again, I don't want to do that again, I haven't had a glass of wine since April, I'm weating a patch and stopped smoking, I'm on anti-biotics, they said I'll need them for 3 months, but then what? Will it come back? Will it be okay?
I just don't know. Everytime I ask about diet I hear that its different for everyone, and I don't know if what I'm eating is bad because I'm taking anti-biotics right now so am I okay or is it the anti-biotics masking my reactions?
I have had diahria everyday since the surgery, every time I eat its a trip to the bathroom a few minutes later, whether I eat or not too, The scarey times are when I get constipated becase thers always this fear that the connection might break, okay maybe that's paranoia, but I'm scared, anyone else had the bowel resection and noit scared anymore? Please let me know. Is this feeling okay now going to last or am I kidding myself?
they said it was successful, and looked good the bowel that's left, could it have been only one area diseased and the rest healthy? Anyone been like that, okay now? Please give me any advice you have, I could use some from a Chrons patient, I've been talking to people that have never had Chrons so its hard to understand. They don't know what warning sign feels like.
This is all new for me, all I know is I was healthy one day and got hit with the worse illness just like that! Then I almost dies because my GI made me think I had so much time to wait in between tests, my husband cried that night, I never saw that before, I don't want to see that again.