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Recently diagnosed

Hi, I'm Nina and I'm 17. This is my story. In June, I was prepping for finals but I couldn't concentrate. My stomach started bothering me and I ended up having diarrhea. At first, it started out with symptoms like the stomach flu, but it got worse. I was supposed to take the SATs, but I couldn't because of how bad it was. On June 9th, after seeing blood for a few days, my parents decided to take me to the doctors. My doctor gave my two tests. Both came back negative two weeks later. (Despite the fact we had to force them to tell us). They didn't bother contacting me again despite the symptoms until we made another appointment by force. (And to this, they called me an unnecessary test subject-like they didn't believe me)

On the 23 of June, they discover the pain spread and they saw the blood, this is when they realize I was right. From then on, I was sent to MRIs (failed since they took only HALF of my intestine ), bloodwork, etc but I was dehydrated to the point where they had to stick the needles three times. By this time, I lost so much weight.They came across nothing until July 18-my colo-endoscopy. During this time, my eating deteriorated badly. It was discovered my whole Large intestine was affected-but the first portion and the last were the worst. (Pus was evident and my intestines weren’t pink in the slightest)

My suggestion is to hammer in to your doctor, if you weren't told that you had a problem. My doctors (save for my GI) didn't believe me, and they ignored me continually. Some tried saying I had IBS and others just flat out called me a liar until the 23. The head doctor was the worst. Please don't give up-if you do you can't get better.
 

DJW

Forum Monitor
Hi and welcome.

First, I applaud you for pushing forward. I shake my head when I hear doctors ignore symptoms like blood and pain.
Have you started treatment yet?

Sending you my support.
 
Hi and welcome.

First, I applaud you for pushing forward. I shake my head when I hear doctors ignore symptoms like blood and pain.
Have you started treatment yet?

Sending you my support.
It didn’t help that I'm the only blood relative in my family with UC (though, autoimmune disease runs in my family. My mom has the reverse of UC, She has IC) Still, they left me be for a while and they screwed up within this time period sadly.

I'm getting treatment now. I don't have my medication for remission yet (heading to SSI office in September) because of the price of Asacol. (Really-909 dollars per month?) My doctor was also shocked by the price and is supporting my case for SSI. Despite this, I am taking predisone so its gone down a bit. It sucks to move and eat sometimes since it hurts me, but I manage. I also take opremizal, zofran (when needed), and special probiotics due to my LI.I might get pain killers and I might get something for my eyes. All in all-its pretty good.
 

dave13

Forum Monitor
Location
Maine
Welcome to the forum.Glad you have a positive attitude.You are right to be assertive with your doctors,we need to proactive in our fight.We can't be complacent.I hope you respond to your treatment!
 
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