Maybe the doctor is wrong?!

[jo1987]

Hi all.

I'm new on this forum...

Whenever I read up on Crohn's I read about terrible tummy pains, diarrhea, stoma's, people taking off work and stop their study etc. I wonder if the doctor has got my diagnosis wrong? Cause basically all my symptoms are fatigue, nausea and painful joints in my back. I am bloated sometimes, but isn't everyone? Strangely enough I was constipated for a few days, which was odd for me after being used to going 3 times per day!Are my meds miracle workers or is my doctor wrong....??

I had a colonoscopy about a year ago after a couple of months of back pain then also bloody stools.
I did also go number 2's at least three times per day.
Specialist found some places that show inflammation. Due to the location and no specific ulcers the specialist reckons it is likely to be Crohn's.
I started Pantesa, the bleeding and back pain went away. Pantesa stopped working, now on Aziotrepine.

 

[24601]

Crohn's affects us all differently in terms of symptoms and severity. Your symptoms may not be the most common set of symptoms but they are consistent with Crohn's and having seen inflammation in your colon it does sound likely that they got it right - plus it sounds like you are responding to medication. Did they take biopsies when they did the colonoscopy? That is considered the 'gold standard' for diagnosing Crohn's but not everyone has positive biopsies for Crohn's - so even if the biopsies didn't show Crohn's disease for you it doesn't mean the doctors aren't right.

With you responding to treatment right now it all looks good. I hope you continue to feel well - some people don't have to deal with all those things you've read about so know that this is definitely possible

 

[my little penguin]

Yeah that ^^^ everyone is different
My DS has constipation as flare
Also lots of joint issues

SpA ( spondyloarthritis ) is strongly associated with Ibd
https://www.rheumatology.org/Practi...itions/Spondylarthritis_(Spondylarthropathy)/

You may want to get a Rheumo to look at your joints
DS has JSpA in both of his hands but his back bothers him as well

 

[jo1987]

Did they take biopsies when they did the colonoscopy? That is considered the 'gold standard' for diagnosing Crohn's but not everyone has positive biopsies for Crohn's - so even if the biopsies didn't show Crohn's disease for you it doesn't mean the doctors aren't right.

Hi thnx for your reply - Appreciated
Yeah they did take some biopsies but it didn't say for sure this was Crohn's. Specialist said we'll just have to see how we go. He tested me for some other things like bacterias and infection (All negative)
My inflammation levels seem to be good. And the other day when I ended up in hospital with severe nausea and a bloated abdomen and constipation all my blood results and X-ray came back clear and I was sent home with 'Probably gastroenteritis...."

 

[24601]

Have you ever had elevated inflammatory markers in your blood? Because some people don't so it's not always a useful way to measure inflammation.

I'd ask about doing a fecal calprotectin test because that might be a non-invasive way for your doctor to monitor your inflammation and see if your meds are keeping it in check.

 

[abigail12]

Maybe your doctor is wrong, it's OK. All people make mistakes. I would advise you to visit another doctor. I wouldn't risk with my health. You can get sick with something and not even know that you are sick. Therefore, it is best to be examined by a doctor at least once a year. My work colleague very rarely went to the doctor, she always treated herself and bought pills without any prescription. When she finally came to the medical examination, she was ordered to do an HIV test. She found a site https://www.prescriptiondoctor.com/ and ordered a test from there and, unfortunately, she was diagnosed with HIV. Now she is getting her treatment and I hope everything will be fine.