I have had my diagnosis since November and did almost 3 months of Prednisone. First 10 mg then 5 and then I just quit. I had a quick flare up the first couple of days but that subsided. Now I have been off for about a month and symptoms are back for sure. It is weird how quickly I forget pain. Like I can't believe it was really that bad and I start dismissing it, and then it comes back, and I'm like "Oh yeah, I remember this! It really was that bad!"
The prednisone changed my life. It was amazing. It got a lot better quickly and then just continued to improve. But I thought I had better try getting off it and see if I was still sick. Well I guess I am. My doc seemed to think it would just go away and not come back. Oh well.
I didn't want to stay on the steroid and even though I recognize that it sounds problematic, I wanted to put up with the pain a little longer and lose like 10 more pounds before going back on. I went from 258 to 145 with this disease, and that was after years of adamantly NOT dieting and trying to accept my body as it was. I was happy to lose, of course I was, but it has been scary too. And now that I am thinner I find myself buying in and wanting to look even better and better. I am still at the very top of the BMI normal for my height, really sitting right on the borderline for overweight. I know BMI doesn't matter, but damn I really want that judgement off my back. I want to weigh 130-something. I didn't want to stay on the steroid because it stopped the weight loss.
But now that I start to hurt again, I remember how bad I felt and how I couldn't do anything, and I think there is no way I can put up with this again even to lose the last 10 pounds.
Oh, Prednisone, why can't I quit you? You helped me so much but I don't trust you.
The prednisone changed my life. It was amazing. It got a lot better quickly and then just continued to improve. But I thought I had better try getting off it and see if I was still sick. Well I guess I am. My doc seemed to think it would just go away and not come back. Oh well.
I didn't want to stay on the steroid and even though I recognize that it sounds problematic, I wanted to put up with the pain a little longer and lose like 10 more pounds before going back on. I went from 258 to 145 with this disease, and that was after years of adamantly NOT dieting and trying to accept my body as it was. I was happy to lose, of course I was, but it has been scary too. And now that I am thinner I find myself buying in and wanting to look even better and better. I am still at the very top of the BMI normal for my height, really sitting right on the borderline for overweight. I know BMI doesn't matter, but damn I really want that judgement off my back. I want to weigh 130-something. I didn't want to stay on the steroid because it stopped the weight loss.
But now that I start to hurt again, I remember how bad I felt and how I couldn't do anything, and I think there is no way I can put up with this again even to lose the last 10 pounds.
Oh, Prednisone, why can't I quit you? You helped me so much but I don't trust you.