Hello everybody, I've come here to try and get opinions of real people that are most knowledgeable about possibly what I'm going through.
To start when I as 9 months old I went from 20-15 pounds and couldn't hold down any food, I was hospitalized 6 weeks and put on IV nutrition as my intestines lost all the ability to digest. I was diagnosed with celiacs disease. 9 years later with a GI at my young age I had a series of endoscopes and gluten challenge and found I was not having celiacs. I had some scarring at the bottom of my esophagus and was diagnosed with GERD and have been on Prilosec ever since.
I am 28 years old now and around 24-25 pretty bad cramping and pain would happen several times a day. This has pretty much consistently continued until now. I saw a Dr 3 times and was prescribed bentyl. I requested a colonoscopy and he said I wasn't there yet a couple years ago. Starting in May my pains worsened and I dropped weight, probably 10 pounds since March until now. I got blood work done and I was low Iron, 6% transferrin sat. 19 IG/DL Iron. I had elevated CRP levels of 5.5 showing inflammation somewhere and a stool sample showed detectable blood even though I couldn't see any. I have seen blood in stools and a month ago with diarrhea usually just small spots four or five max.
My pain is mostly around my belly button to where I wear my pants for reference.
Starting a month ago I got real sick with a flu like illness, sore throat, diarrhea, and fever, my wife had it too so I didn't think it was not normal. Every week for 3 weeks at one point a fever came back and I then treated an ear infection and haven't had a fever for 2 weeks. I've had racing heart a couple times leading to palpitations and have missed two weeks of work because of extreme fatigue. I just barely move around well at all for any sustained period longer than 10 min. Feels like low iron type symptoms, my stools are soft usually but not diarrhea.
I went to the ER and my CBC came back with my HGB levels I the normal range now. It was 11, now it's up to 13.6 in a months time but I feel worse!! I'm waiting on my colonoscopy but I feel like I won't have the energy to do the prep! I never miss work and I'm running my mind in circles scared of my health. My stomach always has pains at points throughout the day and it's never caused me to miss work, I've had joint pain for a couple years during this, but now I just feel so weak and tired all the time! I want to see if I can get an iron push in an IV just to help me get to my colonoscopy but Kaiser won't do it for me citing side effects.
I'm just at my wits end and wrote a ton here but wanted to see if anyone thought this sounded like Crohn's like symptoms, if it is I'm thinking my problem is in my upper bowel because that's where all my pain is. Thanks for listening, I've never felt so drained mentally and physically!
To start when I as 9 months old I went from 20-15 pounds and couldn't hold down any food, I was hospitalized 6 weeks and put on IV nutrition as my intestines lost all the ability to digest. I was diagnosed with celiacs disease. 9 years later with a GI at my young age I had a series of endoscopes and gluten challenge and found I was not having celiacs. I had some scarring at the bottom of my esophagus and was diagnosed with GERD and have been on Prilosec ever since.
I am 28 years old now and around 24-25 pretty bad cramping and pain would happen several times a day. This has pretty much consistently continued until now. I saw a Dr 3 times and was prescribed bentyl. I requested a colonoscopy and he said I wasn't there yet a couple years ago. Starting in May my pains worsened and I dropped weight, probably 10 pounds since March until now. I got blood work done and I was low Iron, 6% transferrin sat. 19 IG/DL Iron. I had elevated CRP levels of 5.5 showing inflammation somewhere and a stool sample showed detectable blood even though I couldn't see any. I have seen blood in stools and a month ago with diarrhea usually just small spots four or five max.
My pain is mostly around my belly button to where I wear my pants for reference.
Starting a month ago I got real sick with a flu like illness, sore throat, diarrhea, and fever, my wife had it too so I didn't think it was not normal. Every week for 3 weeks at one point a fever came back and I then treated an ear infection and haven't had a fever for 2 weeks. I've had racing heart a couple times leading to palpitations and have missed two weeks of work because of extreme fatigue. I just barely move around well at all for any sustained period longer than 10 min. Feels like low iron type symptoms, my stools are soft usually but not diarrhea.
I went to the ER and my CBC came back with my HGB levels I the normal range now. It was 11, now it's up to 13.6 in a months time but I feel worse!! I'm waiting on my colonoscopy but I feel like I won't have the energy to do the prep! I never miss work and I'm running my mind in circles scared of my health. My stomach always has pains at points throughout the day and it's never caused me to miss work, I've had joint pain for a couple years during this, but now I just feel so weak and tired all the time! I want to see if I can get an iron push in an IV just to help me get to my colonoscopy but Kaiser won't do it for me citing side effects.
I'm just at my wits end and wrote a ton here but wanted to see if anyone thought this sounded like Crohn's like symptoms, if it is I'm thinking my problem is in my upper bowel because that's where all my pain is. Thanks for listening, I've never felt so drained mentally and physically!