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Recent content by 25times

  1. 25times

    Working with chronic illness?

    Hey everyone, I hope you're all having a good day. I just got a job (for the first time in months) as a nanny. I'll be taking care of children and cleaning house. Basically, I'll be doing a mom's job. I know there are alot of mothers on here who keep a wonderful home and their kids are well...
  2. 25times

    Anyone have heart problems on remicade?

    I've been on remicade for a while now.. Since like, August. Never had a reaction or anything wierd. But now I've been having some weird symptoms, and no one seems to know whether or not it's from remicade or something else. For the past couple months I've had some neurological problems such as...
  3. 25times

    What next?!

    So, I've been having a horribly bad week. My crohns symptoms started to get worst a couple weeks ago. I got mouth sores, eye inflammation, more diarrhea w/ blood, more abdominal pain. Ok, I can deal with that. Then, last week, I went blind in my right eye 4 times. I've been having tremors...
  4. 25times

    What to do when nothing has worked?

    I've been flaring since April now. I had a brief "remission" type thing at the beginning of july, but I can pretty much equate that to the C-diff infection being cured at that time. I was started on prednisone in the hospital and I've been on it since then. I started feeling really bad at the...
  5. 25times

    Starting Remicade Wednesday! Any advice?

    So I was finally approved for remicade, and my first infusion is this Wednesday. To be honest, I am a little nervous. Prednisone was working pretty well for a bit, until I started tapering, then I flared again. The main goal was to get remicade as soon as possible, but the financial aspect...
  6. 25times

    I need support like a pair of double D's :(

    This might be long. I apologize in advance. I need to write. And I need people to read it. Who understand. I'm feeling very emotional from the pred, and I'm having a bit of a rough time. But let me tell you about the good first. I just turned 21. My birthday party was incredible. I was...
  7. 25times

    Possibly joining the club!

    Hello everyone. I have big/bad/awesome news. I am being considered for surgery. Now, please forgive my ignorance in terms of spelling, vocabulary, and general knowledge. I have not researched much about the surgical aspect, as I didn't think I would be having it any time soon. It could be a...
  8. 25times

    When will it start working?

    I've been taking entocort since May 22nd. I was taking imuran as well, but my doctor took me off a couple weeks ago. I'm just wondering when it's supposed to start "working." At first, I was feeling significant improvement of my crohns, as I started the entocort while I was in the hospital. My...
  9. 25times

    What to expect?

    I wound up in the hospital on Saturday night. I started entocort and imuran on Sunday. I'm worried about the side effects though. The doctors were so happy that the medications are working for my crohn's, they basically said "deal with the side effects." I understand that, and I'm so glad my...
  10. 25times

    Help! I don't know how urgent this is?!

    So. I've been constipated lately due to narcotic pain relievers. I stop taking them every three days to allow myself too have a bowel movement. I was in way too much pain yesterday not to take them, so this is the fourth day instead of the third. I didn't take any this morning and was trying to...
  11. 25times

    I could knock someone out right about now

    So, I take percocet, for the severe abdominal pain that I have. It also helps ALOT with the diarrhea. I know my body. I know when I have a problem, when to stop doing something, and when something is wrong. This percocet is really helping me right now, since I can't afford the drug treatments my...
  12. 25times

    I know, I'm being extremely stupid..

    I feel extraordinarily stupid and vain and selfish and immature. The day I got diagnosed, my dr gave me an rx for prednisone. I told him I wanted to wait until the biopsy was back, so I know for sure. When I got the biopsy back, my other dr (assistant professor of medicine, IBD clinic, ooh...
  13. 25times

    How the hell do you deal with this?!

    how the hell do you deal with this?! My name is Sam. I made this account yesterday after days of frantic internet searching. My username is the number of times I had diarrhea that day.. lol. I haven't been formally diagnosed yet, but after years of dealing with all the typical crohn's symptoms...
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