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Recent content by acc929

  1. acc929

    SCD/Paleo Mug Cake Recipe Share

    Hi all! So I JUST started SCD a couple weeks ago after a particularly nasty episode. I'm a Masters student living in Paris, so my living space is small and my kitchen even smaller - I definitely don't have an oven, not even of the toaster variety. Since SCD requires a lot of cooking, having...
  2. acc929

    Experience with Humira

    I recently began Humira after a rough summer of an abscess, a resection, a leak, another surgery, and then right back to having Crohn's without ever getting remission. I resisted going on Remicade/biologics for about 8 years, and finally I decided that it had become a question of the quality...
  3. acc929

    What do you do for yourself non-pharmacologically?

    I guess if you're in dire straights it can get a bit too exciting, but you catch my drift. Since these forums would intuitively be perused by those currently seeking out information for treatments, and since such perusal would suggest these to be the patients farther from experiencing remission...
  4. acc929

    Nerve pain/regeneration?

    Hi all! So in the past couple months I've had two resections - the first being open w/ a 4-inch incision down from my bellybutton that got infected and was then opened to drain. Then I got an anastomotic leak/abscess and they went back in to fix it when it didn't resolve w/ drain and...
  5. acc929

    Leak at anastomosis after ileocolic resection. Help?

    Hi all. Had surgery april 22. Developed a superficial wound infection and abscess near anastomosis. Both cultures came back for staph, nothing enteric in abscess. Drain was placed (next to right Psoas - ouch!) and is still in, as CT and sinogram show communication from abscess (now gone) to...
  6. acc929

    Superficial Abscess at Incision, drain/packing

    Hi all So yesterday I went to the ER because my incision started draining a TON of puss and had been painful (though not red or hot to the touch) for days :(. They opened the incision about an inch, drained the remaining fluid, and packed it with gauze. From what I've seen around the forum...
  7. acc929

    Crazy gas pain after 2nd resection?

    Hey all Just had my second resection last Monday. It was open surgery, not lapro, but the incision is still quite small, maybe like 4 inches from the belly-button down. Ever since I came home (day before yesterday) I've been having crazy gas pain from trapped gas or something. I'm SUPER burpy...
  8. acc929

    Percutaneous drain hurting! Veterans?

    Hi all I've had a percutaneous drain in since march 23 for an abscess (collapsed, but hairline fistula still there) located in my right lower quadrant near my neo-terminal ileum (resection 2003). I'm going in for surgery to remove the fistula/strictured bowel next Friday. The drain was doing...
  9. acc929

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    Unfortunately this seems to work very differently in different states. Massachusetts legalized medical marijuana in the referendum during the federal election, but every town seems to have a very NIMBY attitude re: dispensaries. I haven't heard of any opening, not even in Boston, and the...
  10. acc929

    Young people and Crohn's

    Hey all So I'm sort of having a moment. A couple weeks ago, I perforated and developed a fistula/abscess. I've got a pigtail drain in still and I'm waiting for surgery (about a foot of strictures that are likely scarring, etc.) in two weeks. I was at school in Toronto, last year of university...
  11. acc929

    Questions about LDN - very interested!

    Hi everyone! So, in a couple weeks I am going in to get my second resection. My last one was 10 years ago, and I've got about a foot of stricturing and active disease around the site of the last anastomosis. I'm on board with the resection since I believe my symptoms come from scarring rather...
  12. acc929

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    Eddie I don't want to be *that person* but please be careful with the percs! I "managed" my crohn's mostly with pain meds for two years and just recently landed myself in the hospital for a *very* unpleasant stay with a perforation and an abscess, which is going to make my surgery in the next...
  13. acc929

    Introducing myself!

    Hi there! So my name's Claire. I'm not entirely sure how this 'your story' thing goes. Hopefully I don't get too self-indulgent. I popped up on this forum a little while ago for Medical Marijuana and also to look into LDN. At this point I was starting to feel desperate as I was "flaring" and...
  14. acc929

    A cranky doc, surgery, and second opinions

    Hey all Relatively new to the forum, haven't asked anything on this board yet. I had a consultation with one of my doctors (one in Toronto and one in Boston, where my parents live). Hadn't seem him in two years since I was abroad for a while, and I had forgotten what a surly b*st*rd he is. I...
  15. acc929

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    Well colour me uninformed! I always assumed it wasn't legal in Canada since I've never heard much dialogue about it here and grew up in the states. Leaving town soon for France, where MM is definitely not legal. Chauvinists. What a botched opportunity! Thanks for the info though, I'm sure...
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