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Recent content by AgentM

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    Which symptoms are prednisone and which are flare related?

    Yes, it sure is. I wondered about that, but I have been off the prednisone for 17 days now. Only seem to be feverish in the morning upon awakening but not every morning and this AM heat was up just a bit. But they say being hot should not contribute to a fever.
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    Which symptoms are prednisone and which are flare related?

    Yeah, they said the low grade fevers are part of the inflammatory process. They said just wait and see. They seem confused. Thanks!
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    Which symptoms are prednisone and which are flare related?

    Thank you. The GI is confused and thinks it is more the disease, at least as far as the fevers go. I didn't ask her about some of the other stuff. She siad it could be prednisone related but indirectly so. Got up this morning with fever of 99.3, been off prednisone for over 2 weeks. Ugh.
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    Which symptoms are prednisone and which are flare related?

    Trying to figure out what was actually the disease and what was the prednisone....your input would be greatly appreciated. Started on 40 mg and tapered to 0. So....brain fog , heart racing, probably prednisone? Feeling out of it, spacey....prednisone or flare? Was originally going 10x/day with...
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    Any suggestions for EEN besides Kate Farms?

    Great, I'll check them out! Thanks once again for the great info!
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    Any suggestions for EEN besides Kate Farms?

    I'm still in a flare and need help!
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    How long does it take Stelara to work?

    Yes, they say sometimes it doesn't work. I'm keeping my fingers crossed!
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    Will Stelara take care of bleeding?

    Yes, I have a bone density scan scheduled. What did you mean by getting into remission faster means not repeating.... Do you mean not going backwards into flare? My vitamin d has been good but I should take a supplement!
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    Will Stelara take care of bleeding?

    I spoke with my GI yesterday. She did not explain it as well as you, only said that the first line of healing is to get the bleeding under control. I'm trying to be sure I don't waste my bone density. Thank you.
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    Will Stelara take care of bleeding?

    This is my first biologic. Wow, sounds like your daughter has been through a ton! I'm glad things are looking better for her. My calprotectin last time was over 2000 and I went back on steroids for a week, then to budesonide and proctofoam. I am trying not to take the budesonide but am still...
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    Will Stelara take care of bleeding?

    40 mg, tapered down to 0 a couple weeks ago after 2 1/2 months, all inflammation came back, now on budesonide 9 mg which seems to be working alright.
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    Will Stelara take care of bleeding?

    Yes, twice a day. Don't know why its not more effective. I tried to cut back on the steroid yesterday and had to poop 5 times with blood and gunk, so I have a big problem, even after 2 1/2 months.
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    Will Stelara take care of bleeding?

    Hmmmm. I had tried Uceris for a week and didn't see any difference. The proctofoam seems to be helping about 20%, but is no good without steroids orally.
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    Will Stelara take care of bleeding?

    Thanks for your detailed replies, I really appreciate them! They at first thought it was Crohns but now are thinking maybe ulcerative colitis. Tons of inflammation in rectum, but patchy proctitis like Crohns.
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    Will Stelara take care of bleeding?

    No...right now they said to just avoid fiber. Thanks for the advice o No, right now they are just having me avoid fiber. Thanks for the advice on the things you find helpful to eat!
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