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Recent content by aideen33

  1. aideen33

    Question about contrave

    My primary ia putting me on contrave for weight loss/depression. Its bupropion and naltrexone. Wondering if anyone knows how this compares to a LDN regimen that others have seen help their crohns?
  2. aideen33

    A return of sorts

    I am back and still alive and kicking. Im still mostly mobile after a couple months of adventures. The fiance left me. In the most horrible way. Kids and i made it to my parents in Cypress (NW of Houston) after a very scary incident with the wheel coming off of my car, on fire and everything...
  3. aideen33

    Blistered/Raw skin on buttocks?

    Its literally like the inside of my cheeks, and the skin looks.... raw, almost blistered, and it hurts like the devil, I suspect its just skin irritation though there are a couple of spots that look like more traditional blisters, What im wondering is what if anything you all have found...
  4. aideen33

    Vein question

    I just started. Ive had 2 infusions. Have my 3rd 17 August then go to the 8 week maintenance schedule. Here is my question- So far we have hit my one decent vein in my left elbow both times, given that its the only really good one i have (my right arm sucks and left hand is a maybe) and we are...
  5. aideen33

    Onset and Duration of Effects/Side Effects?

    I had my first remicade infusion yesterday July 8. (the experience was actually not at all bad, my infusion nurse rocks, my biggest complaint was being stiff from being in the chair for so long). I was dosed with 650 mg tylenol (i still dont quite know why) and 1 benadryl pill (that i know why)...
  6. aideen33

    Fingers Crossed, this SEEMS like a good sign

    my doctor called me tonight. My new GI. Wanted to make sure we were all on the same page as he was doing the paperwork on getting my Remicade approval process started so that was impressive. And when i brought up the nausea from the Imuran, i told him "so i have zofran but i only have lke 1...
  7. aideen33

    Update on seeing new doc

    Saw the new Gastro doc today. Im feeling hopeful. He really really wants me off steroids (I agree!), and feels if humira hasnt worked in the five months ive been on it (it hasnt based on my inability to come off steroids) then its not likely to start working.... time for changes Labs are...
  8. aideen33

    What do you wish youd known?

    My new doc that i saw today says its past time to get me off steroids (Im approaching one year of continuous steroids) and if humira isnt working, and the inability to come off steroids tells us it isnt, that its time to try something else. He has had good results in the past with moving...
  9. aideen33

    Would love to hear from those whove tried both humira and another biologic

    (Back story, im getting nowhere with my current doc and working on the paperwork to see another one in the area soon) Ive been on Humira since december, after starting Imuran in November. The combo (at the current doses) isnt working well enough to be able to taper the steroids so Im still on...
  10. aideen33

    Eye pain

    I was checked a few months back for possible Iritis from the steroids and everything checked out However, i have this weird thing now.... its very very odd I know but every time i tear up (from allergies, or if im upset or whatever and cry) , my eyes *burn* Anyone experience anything like...
  11. aideen33

    Been away for a bit- supremely frustrated

    Back story- I started Imuran in November, and Humira in December. I was originally told 8-12 weeks til wed know if Humira was working. Now that its been longer than that, and another steroid taper has failed, Im being told "Oh well it can take a year or even 2 before we really know" and that "we...
  12. aideen33

    No DX but a question for you all

    I figured this is the best group to ask. Back story- my 6 yr old son has autism. He is not toilet trained as he has never been able to successfully recognize the urge to go and connect that to going to the toilet. Pedi referred us to urology to ensure there wasnt a physical problem being...
  13. aideen33

    Humira withdrawal for lack of a better term?

    I am on bi weekly humira injections. I feel relatively decent (cant get off steroids but thats a whole separate issue) from about 24 hours post shot (fiirst 24 hrs are what ive taken to calling the humira flu where im just run down etc) till about 2-3 days before my next shot. I feel *awful* for...
  14. aideen33

    Taper speeds question

    We attempted once again to taper my prednisone now that Im on Imuran AND Humira. I was on 30-40 mg dosages from June 2014 til now. GI had me initially go from 40 to 30 with a plan to drop 10mg every 7 days. This did not go well... at all.... Im now back to 35mg a day for the next 3 weeks, and...
  15. aideen33

    Anyone had to stop due to liver/kidney issues?

    Im undergoing testing due to unexplained edema in one leg. GI and PCP have said that while it is possible this is steroid related as Im just now tapering after being on since June 2014, they are concerned that it could be liver or kidney problems and GI says that is a concern with Azathioprine...
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