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Recent content by Amandakmk

  1. Amandakmk

    No response to medications, now having surgery

    Hi everyone it’s been a while since I have posted but I have had so many sinus infections and just feeling so lousy . Currently I am on 40mg Humira every week and .5 mexthrotxate each week the dr tested my levels and it was not showing up and I have what seems to be a constant flare , now my...
  2. Amandakmk

    Need advice please.

    You are perfectly fine , I got on this forum because my dr recommended it would help if I found one. I just want answers as to what and why all this is going on. It’s crazy but everyone on here is very nice and helpful
  3. Amandakmk

    New to crohns

    An update, the blisters on my hands and feet and now my head are psoriasis. I had an mri done and not much improvement with Humira . My pcp did some testing for lupus but sent everything to my rheumatologist, my gastro dr wants more testing done as well and is thinking that since it’s solely in...
  4. Amandakmk

    Need advice please.

    I had stomach upset every time I ate and heart burn , and I felt like I was drunk it was so weird feeling, I took some zofran which eased the sickness but still felt weird I had the injection .4 ml which I think was 10mg very modest dose
  5. Amandakmk

    How to get mexthrotxate injectable out of your system

    I took mexthrotxate 3 days ago and having a lot of nausea and diarrhea the dr said to stop taking it and drink water , but what I don’t know is how long will this take and how much do I need to drink? Oh it’s injectable and only .4 ml
  6. Amandakmk

    Need advice please.

    So I now have eczema on my hands and feet due to stress 🙄 the creams don’t work and it’s very painful. On another note, I had a colonoscopy again and there is slight improvement but all inflammation still there . The pain in my joints has worsened and my crohns has gotten worse so my dr...
  7. Amandakmk

    new

    That is a relief to hear ! I do want my joints to ease but I am so scared of these medications
  8. Amandakmk

    Not Sure

    I had pancreatitis years ago , it almost killed me really did a number on my kidneys and liver . I had no idea what had caused it until just last year when I was diagnosed with crohns . It’s scary but also showed me how to go on my liquid diets to calm my gut and get me back on track. The good...
  9. Amandakmk

    new

    I forgot to say they did mention we might possibly try stelara , but I go back to see my dr on the 22nd and I hope and pray for good news , and thank you so much for all the good Info , it is very much appreciated
  10. Amandakmk

    new

    Yes I have seen one and she wanted to start methotrexate but I’m so scared to take too. But my joints kill me and now this exzema stuff . 🙄
  11. Amandakmk

    new

    I went to have yet another colonoscopy last week , my crohns has not improved in fact maybe worse and I have to have another MRI! This skin rash with the blisters on my hands and feet is eczema, I can never get rid of it and only put steroid cream on it the dermatologist told me there was...
  12. Amandakmk

    new

    I feel you on the drugs and side affects , I was scared to start Humira although the prednisone made me feel so much better but the side affects were awful! Humira I have seen little to no change, I had and obstruction and went septic but am currently looking for more natural ways to control...
  13. Amandakmk

    Inflammation Higher After Starting Remicade

    I am not on Remicade but have experienced worse symptoms on Humira , like a whole lot more flares than ever . I’m sorry I know it’s tough to go through this and I am still struggling with all mine as well emotionally it has drained me .
  14. Amandakmk

    Need advice please.

    I will definitely ask and post , and no I have not seen one yet . I’m thinking it maybe a pretty good idea at this point
  15. Amandakmk

    Need advice please.

    I do t know what this is but it’s on my palms and looks like I have burnt my hand . The dr said it’s probably due to crohns I have no clue but it’s painful
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