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Recent content by ameslouise

  1. ameslouise

    Sorry I've been MIA!

    Hi Everyone - I am sorry I have been away for so long! Lots going on in my life - all good things - and just busy in general! March 15 was Bilbo's birthday - Happy Birthday Bilbo! We have been living happily together for 1 year and life is better than ever! I am thankful everyday for my...
  2. ameslouise

    Elidel?

    Hi everyone! I'm really struggling right now with a rash around my eyes. I am 99% sure this is an auto-immune manifestation. It has been non-responsive to everything except Emu oil, and that only barely keeps it at bay. I was unable to get in to see a derm right away. But I did a lot of...
  3. ameslouise

    Super gassy since my obstruction

    Hi Stoma buddies! I am seriously gassy ever since my obstruction incident last month! I never used to have problems with stoma farts or my bag filling up with air (except maybe sometimes overnight, but not every night). Now I am Bilbo is farting like crazy, and my bag is filling up with air...
  4. ameslouise

    Easily absorbed Vitamin B complex

    Hi Everyone: I just wanted to share with everyone a Vitamin B product I have been using for several months now that I beleive is helping my Vitamin B levels stay within tolerance between my monthly B shots. It's called Isotonix Activated B Complex and you can buy it from Market America here...
  5. ameslouise

    Take Steps Philly - May 21

    Hi All - Just wanted to report that I successfully completed the Take Steps walk with the CCFA yesterday in Philly! Okay, so 3 miles may not seem like such a long walk, but it's just two months after my surgery so to me it felt like an Iron Man! Thanks to Amy Wooden, our team captain! It was...
  6. ameslouise

    45 lessons life taught me

    I'm sure this has been posted before somewhere, but it's an goodie so I thought I'd give everyone a life. #40 is without a doubt my favorite. Enjoy!!! ________________________________________________________ Written By Regina Brett, 90 years old, of The Plain Dealer, Cleveland , Ohio "To...
  7. ameslouise

    The Phantom Menace

    Any of you that have had your arse sewn up get phantom pains? You know, like the amputee that still gets an itch on his foot? I was told this could last a few months, but it's still so weird feeling. Sometimes when I can feel food pushing thru my gut, my arse will twinge, almost like "The...
  8. ameslouise

    I'm.... so.... tired!!!

    I am almost 8 weeks post op and still so low on energy! Please tell me this is normal. I am good in the morning, do my stuff, go to work, etc. But after lunch, by around 2 pm I am wiped out. Right now it's 7:30 pm and I feel like I am going to collapse. Can you remember how long it took...
  9. ameslouise

    "Don't Touch my Junk" - TSA Tyranny

    Here's a good op-ed piece by Maureen Dowd, columnist for the NY Times: http://tsatyranny.com/2011/04/stripped-of-dignity-by-maureen-dowd-apelaine-thompson/
  10. ameslouise

    Passover!

    Anyone else out there celebrating Passover? Got any good Crohnie Passover recipes to share? Here's my best advice to others for Passover eating: STEP AWAY FROM THE BRISKET. Those stringy meats kill me every time! Yesteday I made some muffins with quinoa flour. Levi said they were pretty good...
  11. ameslouise

    Great way to eat carrots

    Not sure about all of you, but I have a really hard time digesting carrots. It's almost like they put themselves back together no matter how much I chew them! I have to be especially careful now with my new bag, good old Bilbo. In the past I have cooked them to death and pureed them and that...
  12. ameslouise

    UFOs

    Do you ever get UFOs (unidentified floating objects) in your bag??? This morning it took me ten minutes to figure out what the little green squishy bits were before I remembered the tartar sauce I had on my fish sandwich last night! Am I weird for looking? You have to look, right, to know...
  13. ameslouise

    Crohn's Related Tattoo pics!

    Inspired by Hailey's tattoo discussion in the Your Story section, here is a place where we can post pics of our Crohn's or disease related tattoo. I'll start! Here's mine. It's a heart (that's me!) with stars underneath representing my husband Levi, son Harrison, my mom and my dad. My...
  14. ameslouise

    For the Brits

    Someone sent me a gift basket with English Muffins and Crumpets. WTF do I do with a crumpet? Do I toast it? Put jelly on it? They look spongy. Never had one before and am at a loss. Do I need to start drinking tea????? :) - Amy
  15. ameslouise

    Getting a good seal

    Hi stoma buddies: I am having trouble getting a good seal around my stoma. I am using stoma paste, but I can remember using it before when I had my temp. I have had two blow outs already. I think part of the problem is that I have to cut the flange so it doesn't cover my incision, which is...
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