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Recent content by Aphrodite_x

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    Advice Needed - Official Compaint of Treatment

    Hi guys, I'm looking for some advice regarding whether or not I should make an offical complaint regarding the treatment I have received for fistula's. (Sorry this is very long) In January this year, I went into hospital to have a standard colonoscopy under general anaesthetic. Before the...
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    Anything that can help joint/muscle pain?

    Morning all! Does anyone have any tips on how to help joint/muscle pain? I am in an active flare, have been for about a year now. New consultant has started me again on azathioprine, which has really settled my bowels, and has sorted nhs funding for humira, which I hope to be starting soon. I...
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    Fistula with seton advice? Possible fissures

    Hi guys, Hope everyone is doing well :) I'm wondering if any of u have experienced this after Seton surgery. I had two draining setons placed on 6th January for rectovaginal fistulas. I have another 3 fistulas that weren't treated at this time. My question - should i still be in pain after...
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    Surprise seton!

    Hey guys, Hope everyone is well and had a lovely Christmas and new year :) I was hoping you guys would be able to give me some advice. I had a colonoscopy under GA a few hours ago. When i woke up, the nurse said to me 'have you ever had a Seton before?' i was like what? Wth is that? She...
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    Erythema Nodosum

    Hi all, Does anyone have any tips on how to deal with the pain from EN? My hands, feet, legs, hips, ankles, lower back and now my jaw are killing me! I'm waiting on an appointment with a rheumatologist but is there anything I can do n the meantime? I'm ok at home, I can go lie in a bath or...
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    Painful Red Patches

    Hi all, Can someone give me a bit of advice? For the past few weeks, my body has been aching. More specifically, my ankles, feet, knees, back, hands and wrists. Its gotten to the point now where I'm struggling to drive because of using the handbrake and gearstick, and the only shoes I can get...
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    Colonoscopy - Bowel Prep

    Hey everyone :) Sorry if this is in the wrong section of the site, please feel free to move it if it is. After being diagnosed 3.5 years ago with CD, I have met my new surgeon who wants to do all investigatory work again. (I have only ever had a sigmoidoscopy and barium meal, because I freaked...
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    Colorectal Cancer Specialist

    I'm scared! Just got off the phone to my IBD nurse (only called to change my address as I moved last week) and she told me I have an appointment with a Colorectal Cancer Specialist on 31st October. Actually terrified. She said it was because she had referred me to gyn because of suspected...
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    Headaches after Eating?

    Hey guys, Looking for a bit of advice. I have noticed that recently, after I eat, I am getting really bad headaches. The pain is behind my right eye/temple area. I've called my consultant nurse to see if it could be caused by my CD but she said she really doesnt think so, she's never heard of...
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    Green output - should I be worried?

    Got a fright this morning when I went to loo, and what came out was bright green! I mean like a lime green, was weird. Its happened everytime I've gone to the toilet today! Should I be worried about it? Dont want to google 'green poop' on my works computer :ylol2: I'm currently taking 75mg...
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    Getting to the end of my patience now :'(

    Sorry guys I need a little outburst tonight :( I am so sick of this CD ruling my life. I've been in a flare now going on 5 months. I'm exhausted constantly, have no appetite, my face is all bumpy, I'm walking like an old lady because my joints are all sore and yet again I'm stuck on toilet with...
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    Strange Pains

    Hi guys, Can any of you shed some light on these pains I'm having? They started on Tuesday. Different from my normal pains, which is like a constant ache, that gets worse when I need the toilet. The new pain feels more like a stitch, sharp pains when I breathe in, I'm walking bent over, like...
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    How do you know when you are in remission?

    Hi guys, Just wondering how you know when you are in remission? Does your GI tell you, or is this something you know yourself? I can't believe how much better I've felt, only in the past week! Stomach pains all but gone, BM down to about 5 a day, semi formed. I'm down to 10mg pred a day, 100mg...
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    I think I have a fistula/fissue but I'm not sure..

    Hi guys, I'm beginning to get a bit scared I have a fistula or something like it. I dont really know what exactly it is, and reading through hasnt really shed much light for me. I'll describe below what I'm experiencing and see if anyone can enlighten me. I have skin tags, and what I have been...
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    I feel horrible today

    Bad day today for me. Was up majority of the night last night, but not with my usual sore tummy and d, but with a migraine! I know its probably because I'm not drinking anywhere near enough water, so I'm trying to drink lots today. Also I've had bad night terrors and sweats past 2 nights...
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