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Recent content by Astra

  1. Astra

    After surgery - update

    Hello everyone and thank you for all your kind wishes and messages. I am now 10 days post op and I'm doing well. The procedure - a right hemicolectomy was done laparoscopic and I have a 3 inch incision below my belly button through my old hysterectomy scar. Findings - grossly thickened terminal...
  2. Astra

    Surgery on Friday

    Hiya everybody, not been on the forum for ages, been poorly. Anyway, I'm having a resection on Friday. I don't have any questions, got everything I need off this forum! I hope it's going to give me some remission and my life back on track Not sure whether it's going to be keyhole or open, the CT...
  3. Astra

    Having a bad time!

    Hiya everyone I've not been on for ages, I've been so ill! Summary I was told to come off Humira, it wasn't working, and I've been referred for surgery, waiting for an appt and an MRI I was told I've got high blood pressure, it was alternating between 175/122 and 168/110, so the GP said it could...
  4. Astra

    Update on my horrible flare!

    I haven't been on the forum for a while, I just feel so depressed! I have been on Humira fortnightly since January and 6 weeks ago the doc added Methotrexate 25mg once a week with Folic acid 5mg. I also was told to stop the Pentasa after 8 years. I have been feeling terrible ever since! Constant...
  5. Astra

    Sharing a tip about Methotrexate

    Hiya everyone, I wrote in the Methotrexate forum that my consultant had put me on this cos he reckons the Humira isn't 'getting through', so to speak. I researched quite a bit about this med, and found out that it's similar to azathioprine, an immuno suppressant. And I was scared about taking...
  6. Astra

    Let's throw Methotrexate into the mix!

    Hiya everyone, hope you're doing ok xx I've not been well last couple of weeks, LRQ pain, diarrhea, nausea, dizzy etc. I was worried sick that an obstruction was brewing. I went to my consultation yesterday and saw a new gastro, mine's on annual leave. He was very good and knew his Crohn's! He...
  7. Astra

    IBD Conference (patient panel)

    Hello everybody, I've been MIA for a while but I'm ok, just not had any Internet! anyway, I attended the patient panel IBD Conference today at my hospital. It was good, but I didn't learn anything that I didn't already know! In fact, I stood up and advocated all about juicing. This is because...
  8. Astra

    Can anybody help CheerBear?

    Poor CheerBear (Rachel) is desperate for help after her surgery Thanks xxx http://www.crohnsforum.com/showthread.php?t=51268&page=2
  9. Astra

    Raising some awareness - it's a start!

    If you're not in the UK, you probably won't know this man - Rylan - off the X Factor, but his Mum has Crohn's. But it's good that it's on Sky news, it's a start! http://www.youtube.com/watch?v=frAT_jJaYZ0
  10. Astra

    I don't feel good on Humira!

    Not been on here for a while, feel horrible, so permission to moan! I've had 6 injections now including the loading doses. I feel worse than ever, not as bad as when I was blocked and in hospital 3 years ago and drugged up to the eyeballs on Pred etc. But, I got a cold the week before Easter...
  11. Astra

    Delaying my shot

    I've been off work all week with a horrendous heavy cold, sore throat, sinus pain, headache, the works. My Humira shot is due tomorrow so I spoke to my IBD nurse and he said to delay it for a week. He said to get well fully first. I didn't question him, I wish I had now, you just don't think at...
  12. Astra

    The Amitriptyline Club Support Group

    I'd love this to be my Support group, cos I'm in love with it. I love David too, so I'll be in his testing one too
  13. Astra

    Humira & Me...

    ....are embarking on a relationship...my NBF, don't let me down! I jabbed the 2 loading doses in myself, I was soooooo brave! I'm using the syringes and the first injected site bruised, and that's cos I was gripping my belly fat too hard! The 2nd one hasn't bruised, cos I let go of the belly...
  14. Astra

    Sigmoidoscopy tomorrow!

    Yeah can't wait, NOT! But I don't have to prep and drink the wallpaper paste, I'm having an enema when I get there. This is because the doc only wants to check the descending colon and rectum where the MRI shown thickening with a possible fistula. Wish me luck! xx
  15. Astra

    New NICE guidelines - Managing Crohn's Disease

    NICE - National Institute for Health and Clinical Excellence have published their new guidelines today on how doctors can/should manage their patient's disease. http://publications.nice.org.uk/crohns-disease-cg152/introduction
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