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Recent content by Avw

  1. Avw

    Urgent-where to order spray/powder in US?

    I've read that some of you use sprays and powders for extremely irritated and bleeding stoma sites. I've contacted the three major suppliers I know of and none of them carry it. Hoping someone in the states knows of a supplier, as I think everyone I read using them resides in the UK. Any other...
  2. Avw

    Scuba diving with a bag?

    Quick question- is it possible to scuba dive with a bag? I've read almost all threads and was very relieved to find out there aren't many problems with flying (whew!) but would be interested to know if any of you have experience diving or snorkeling with bags, etc...? Any and all input welcome...
  3. Avw

    Having issues with juicing and acidity level -- Any advice much appreciated!

    So, I started juicing about a week ago. I did lots of research and decided to mostly juice carrots, since I am in an incontrollable flare for over two years now. Overall, the juice makes me feel better, strength, energy, mental clarity, etc.. but it is wreaking havoc on my digestive system. I...
  4. Avw

    Possible cause of Crohn's Disease... Has anyone else read this?

    Just wondering if anyone else has read this article and your thoughts on it. http://www.projectcensored.org/top-stories/articles/19-bacterium-in-cows-milk-may-cause-crohns-disease/
  5. Avw

    Post-op/abscess/my story

    Hey guys, wasn't sure where to post this in order to get the most responses, and I've never officially introduced myself so I'll try to keep it short and sweet! I was diagnosed with Crohn's in 2004 at age 18, but was experiencing symptoms long before. Soon after dx I was put on Remicade. It...
  6. Avw

    Abscesses, lesions, and tumors, oh my!

    Oh, where to begin... I stopped responding to conventional treatments about a year ago, and have been dealing with many abscesses and fistulas all year. During one of my hospital visits, about two months ago, I had a pelvic MRI to locate the abscesses my surgeon couldn't find the old fashioned...
  7. Avw

    Mayo Clinic in Rochester

    Hi guys! I've just confirmed my first appointment at the Mayo Clinic in Rochester, MN. It's also my first time seeing a doctor other than my local GI, even though I've had Crohn's for 8 years. I just wanted to see if anyone had any advice or experience with the Mayo Clinic to share. Don't be...