• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by aypues

  1. A

    Pain, Fatigue no Loose Stools :-/

    This. You need to be on something even after surgery. Preferably immediately. Your immune system dysfunction doesn't just turn off bc of the operation. The recurrence of Crohn's is much lower in people treated with a biologic after surgery.
  2. A

    Another Stricture

    Intermittent pain, chronic anemia/blood loss, general malaise. No full-on blockages thank god, but the lumen is down to 9mm so that would account for the pain.
  3. A

    Another Stricture

    For a short one like that they might do a strictureplasty. I have a 20cm mid ileum stricture that is coming out in August, we think (waiting on a date). Not looking forward to it but hoping it helps!
  4. A


    I’ve been on Wellbutrin (aka the Wells) SR for about 20 years. I’ve found the full dose of 300mg was what has worked best for me. I tried the XL once daily formulation but it gave me a headache at 300mgs - 150 was no problem. I’ve tried varying doses. I couldn’t function without, I become not...
  5. A


    I am on a 4 week schedule for Remicade and labs are done every time. Cbc, liver panel, and now iron studies since i’m bleeding constantly (slowly).
  6. A

    Exhaustion from Entyvio, Iron supplementation, post-Prednisone taper or Adrenal issues?

    Yes. 100% better. Oral iron is for the birds. I actually don’t wait anymore until my HGB declines significantly. We monitor ferritin now, the body’s iron stores.
  7. A

    Severe acne suggestions

    At night use topical Tazorac - it's excellent and anti-aging too. Start at the lowest concentration, in cream format, 0.05%. Could be an issue with insurance approval but my doctor's office gets it approved. If not, go with Retin-A Micro. Cleocin-T in the daytime to control bacteria. Make sure...
  8. A

    Best IBD Centre in US--Your Recommendation for Young Adults

    UCSD. so happy I live in town and have the best right here. My doctor, Brigid Boland, trained under Sandborn...they all did there at UCSD's IBD center. You can see him once but thereafter you deal with a NP, so didn't want that and prefer a female doctor anyway.
  9. A

    Turmeric / Curcumin

    Curcumin was definitely bad for me. I was having constant pain on it and had to discontinue before a double balloon procedure and felt immediately better off it!!
  10. A


    Who is using Curcumin for their IBD? I’ve been taking a fairly low dose, only 500mg/day. But in researching more it looks like the therapeutic dose is quadruple that amount, 2g/day. https://www.karger.com/Article/FullText/336720 I’m running out of medical options and have now been thinking...
  11. A

    Soy protein isolate

    Does anyone take soy protein? I saw this study and decided to try it: https://www.sciencedaily.com/releases/2017/04/170426130331.htm I was immediately better, like within 24 hrs! Been on it 4 days now and things have calmed way down. I use NOW Sports unflavored Soy protein isolate, blended with...
  12. A

    Carrageenan = attack

    Just another PSA - carrageenan is a nightmare!! I was halfway thru drinking an Ensure Enlive when I noticed the carrageenan on the label. I finished the drink and almost immediatley felt nasueated. Within an hour I was having D. I had bad abdominal pain for 2-3 days! Stay far away!!!
  13. A

    MRI Tips

    Hi guys, I just had an MRI (MR Enterography) yesterday and made a couple changes that were very successful. 1. Changed oral contrast from Breeza to Volumen. I had Breeza in the past but it contains sucralose which is bad for Crohn's, and a lot of sugar alcohols which cause cramping and...
  14. A

    Sleep requirements

    How much sleep does everyone need in order to function normally? I set my alarm for 8 hrs but usually my body needs 9! I wish I could function well on less like some others but I just can't.
  15. A


    Anyone dealt with drug induced neutropenia? I’ve been on high dose Remicade and Cellcept for about 6 months. Just now developed a pretty bad case of neutropenia, ANC level is 0.4. Doctor took me off Cellcept and we are rechecking a level in 2 weeks, maybe sooner. Another MD friend told me...