• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by aypues

  1. A

    Continue on Stelara or switch to Entyvio?

    Oh good. hopefully the Remicade with Imuran will work for you! For me the Remicade kicked in immediately, like next day. I'd advise to completely eliminate the stabilizers/emulsifiers on the bottom of the UCSF list. They're in everything (like Ensure, sports drinks, anything processed) but it...
  2. A

    Continue on Stelara or switch to Entyvio?

    Oh good! I could never tolerate imuran/6mp, made me feel really strange. My colonoscopies have always been pretty good, but I have small bowel disease. Have they done an MR Enterography to determine the extent of small bowel involvement?
  3. A

    Continue on Stelara or switch to Entyvio?

    I would characterize it as a “no highly processed food diet” lol. Fiber is good for your microbiome of course, and agree that vegetables should be fork tender until the gut heals, and certain fruits with skins should be avoided or peeled at first. I’ve had no issues with it and all my markers...
  4. A

    Continue on Stelara or switch to Entyvio?

    If your albumin is low they may need to dose escalate you. They will probably check a level in a few months. I’m on double the dose (10mg/kg) every 6 weeks. Are they going to try combination therapy as well? Hope the infusion went well. Have you had any surgeries yet?
  5. A

    Continue on Stelara or switch to Entyvio?

    no, not at all. I got much worse on it. Ended up back on Remicade then decided on surgery in Aug of 2019 (good timing, pre-covid). Now on Remicade and doing well with many dietary modifications. I am attaching the specific diet I follow from UCSF.
  6. A

    Latest Dietary Guidelines for IBD

    But it's a waste of time to post it here with such a small audience. If you really wanted to help the world's IBD sufferers you should be a researcher and contribute scientific knowledge. Do you have a PhD in a relevant field? I doubt that the evidence is really there though, as persuasive as...
  7. A

    Latest Dietary Guidelines for IBD

    You edited your post. ok. Like I suggested before, you should contact the MDs that put this study together to make your objections known to the medical community.
  8. A

    Latest Dietary Guidelines for IBD

    Kiny, did you really read the study? Here is a quote from pg 15: "It is notable that maltodextrin is found in many nutritional supplements, including some used for exclusive enteral nutrition which has been demonstrated to be an effective therapy. Thus, while there is theoretical and animal...
  9. A

    Latest Dietary Guidelines for IBD

    Kiny, please communicate your findings to the MDs that created this from UCSF. I’m sure if the evidence was strong enough your ideas would have been included.
  10. A

    Latest Dietary Guidelines for IBD

    Full article attached here which is basically the same as slide above.
  11. A

    Latest Dietary Guidelines for IBD

    Here is the most recent research into dietary modification with solid evidence.
  12. A

    Would you take this drug?

    Stelara is not a good first choice at all. Just based on this I would move doctors to an IBD specialist. regarding efficacy, yes, they are not high...but better than steroids And way less harmful! what is your resistance? I don’t understand why you are only highlighting the negative. What is...
  13. A

    Would you take this drug?

    Is this your first biologic? Remicade is the gold standard and is 1st line biologic therapy for most patients.
  14. A

    Entyvio + TNFα combination therapy

    yes. Stelara made me substantially worse.
  15. A

    Entyvio + TNFα combination therapy

    Anyone on Entyvio plus TNF blocker? We are running out of options for me. I had surgery in August and my MRE shows 2 new mildly diseased segments already! Very alarming. Fecal cal is 272. I’ve done most every drug, and started Entyvio in August 2 weeks after surgery. Not responding to it by...
Top