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Recent content by BoyMama2000

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    Surveillance Colonoscopy with Crohns Colitis

    He is already on Stelara and it appears to be helping but not 100% and may be losing some effectiveness. However it appears his doc wants to discuss keeping him on Stelara and maybe doing something else. We will see. I wonder if cycling Uceris every 3 months for 8 weeks would be a good thing...
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    Surveillance Colonoscopy with Crohns Colitis

    It is good to know their hesitation. Uceris has worked very well for him so if he did change to a new biologic, I imagine he would go on Uceris for 8 weeks as a bridge. Stelara is working right now for 90%+ of his GI tract and rectum can be treated with suppositories but I really wonder if an...
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    Surveillance Colonoscopy with Crohns Colitis

    Thanks for your information. The doctor said in an email today that he is not planning to change Stelara but wants to discuss in person as there are a lot of nuances to consider. It is controlling most but I would prefer to move to Humira to see if that does a complete job. He has started canasa...
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    High Calprotectin, Negative MRI

    It certainly could be inflammation in the colon....if you really want to know then a colonscopy is needed. My son started with Crohns in ileum only. Then about 4 years later it was all over the colon. That can happen....however your FCP is certainly high but not crazy high....my son has been...
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    Surveillance Colonoscopy with Crohns Colitis

    Thanks, we did learn that is a precancerous type of polyp even though his was small(7mm) and with no dysplasia. We are glad he will get frequent scopes anyway because of Crohns. They said it was sporadic and not related to Crohns. What is interesting is that his dad had what we now know is a...
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    Surveillance Colonoscopy with Crohns Colitis

    Thanks, I am guessing he will need more frequent dosing with humira and remicade given his past with biologics. His job this summer (he did an internship where he will be working) had him working pretty frequently on Saturdays and many Sundays but he may be able to schedule infusions. I hear...
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    Surveillance Colonoscopy with Crohns Colitis

    Stelara was his first biologic. We are not sure what they will recommend next. He will be starting his first job in June (senior in college now) as an investment banker working very long hours....this has been his dream since high school. He is thinking he would rather Humira so he doesn't...
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    Surveillance Colonoscopy with Crohns Colitis

    Hi Everyone, My son (age 21) had a scope today (6th in 4 years). He was dx with Crohns at age 13 and it was just in terminal ileum at that time. At some point in late high school it likely went to colon. He was put in Stelara his freshman year of college at age 18. Scopes since that time...
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    Stelara every 12 weeks in the UK, not frequent enough?

    My son had to move to every 4 weeks after the first year. It made a difference and as you can see in this thread, it appears to be that way quite often so 12 seems too far out. You can ask to have your blood levels of Stelara tested at 11 weeks after injection to see if they are too low and...
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    Stelara stopped working

    Have your levels been tested and if you developed antibodies? I would test for that first. My son stopped responding after a year and levels were low with no antibodies so they increased dose to every 4 weeks. I have also heard of a re-loading dose and adding in methotrexate or other med to...
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    Help arranging Stelara injections in San Francisco

    Hi Everyone, My son will be doing an internship in San Francisco (down town financial district) this summer and will need 2-3 Stelara injections when there. He has not been able to give them to himself. Do you know if we can arrange to have them shippped to a medical office downtown and pay...
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    Platelets Low after 2 weeks on Imuran

    Hi Everyone, My son has been on Stelara for 2 years. Initially every 8 weeks and then every 4 weeks for the past year. It was helping but not 100% so we added Imuran 2 weeks ago. His bloodwork all looked good today except his platelets were low... 121 when 150 is low end of normal. Doctor...
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    Adding additional immunosupressant to biologics

    Have your doctors told you that biologics work better when used with methotrexate, 6pm etc. or is the primary reason to suggest this to avoid developing antibodies? My son's doctor wants him to add methotrexate to Stelara hoping it will reduce inflammation in his rectum. The rest of his scope...
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    Suppository Coverage and Outcomes

    Hi Everyone, After 12 years of great insurance coverage, we have had two big issues lately. Anthem Blue Cross denied coverage for hydrocortisone suppositiories saying this is a medication they just won't cover. We are out $850 there. Now they won't cover mesalamine suppositories 1,000mg...
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    Suppository coverage information

    Hi Everyone, After 12 years of great insurance coverage, we have had two big issues lately. Anthem Blue Cross denied coverage for hydrocortisone suppositiories saying this is a medication they just won't cover. We are out $850 there. Now they won't cover mesalamine suppositories 1,000mg...
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