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Recent content by Bunty

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    Assumed to have antibodies

    I saw my GI last Wednesday and it has been assumed that I have developed antibodies to infliximab. This assumption has been made as I had a severe reaction at my last infusion, and continuing joint pain for the seven weeks since then. I am to have a blood test done to confirm these suspicions...
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    B12 can you overdose?

    I currently have a B12 injection every twelve weeks. However I've noticed that I get really tired and exhausted for about two or three weeks before the next injectin is due, and then pick up again once I've had it. The nurse has told me that it can't/won't be done more frequently. I was...
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    Humira routine in UK

    I may be started on these self injections due to developing what's looking like infliximab induced psoriasis, and I have a few questions.. I see in the USA the loading dose is given as four injections one after the other, on the same day I think, is it the same in the UK? How frequently are...
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    Infliximab on monday

    I'm due my first infusion at the hospital on Monday, have to be there at 11am. I've been told to allow all day, could still be there at 5/6pm apparently 😳 So, how did your first time go...I'd love to hear all the details, just so I have some idea of what to expect. Thank you. Bunty x
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    Infliximab and oral thrush

    I currently have a very persistent dose of oral thrush, probablyly due to just having been diagnosed with steroid induced diabetes and still trying to get on top of the blood sugars. I've had oral meds to swill around my mouth, and two lots of pills, just completed the second course but the...
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    Steroid induced diabetes

    Has anyone been diagnosed with this? If you have, I'd be very grateful if you could answer a couple of questions for me.. Did it all go away once you were off the steroids? Was it type 1 (insulin) or type 2? Did you start tapering down the steroids as soon as you got the diabetes diagnosis? If...
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    Prednisolone..a blessing & a curse

    I've been on pred since 1st July, tapering down from 40mg to 5mg..then going right back up to 40 again, which I've now been on for 26 days and will continue on for at least another 18 days till I see my consultant before I can even contemplate beginning to taper. The good news...the bleeding...
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    Faecal calprotectin test pack

    I got a letter through from the hospital asking for me to do one of these tests via my GP surgery. When I went to the surgery to pick up the necessary equipment they seemed uncertain which test pack to use and have given me one which you do over three days, using wooden sticks to put a tiny...
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    Where does your medication come from

    It looks very likely that I'll be self injecting adalimumab, and I was wondering how those in the UK who do this, get their medication. Someone I know, who knows someone, who knows someone else..very vague ..says they have it delivered. By who? From where? What volume ie. a weeks worth, a months...
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    Where does your Humira come from

    It looks very likely that I'll be self injecting adalimumab, and I was wondering how those in the UK who do this, get their medication. Someone I know, who knows someone, who knows someone else..very vague ..says they have it delivered. By who? From where? What volume ie. a weeks worth, a months...
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    Taken off aza

    I was taken off Aza earlier this week due to some liver enzymes being far too high. I'm also coming to the end of nine weeks on prednisolone, I'll be down to 5mg from tomorrow. About ten days ago I noticed a very small amount of pale blood when I wiped, nothing significant I though... However...
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    Infliximab at 65

    Does anyone know why there is a reluctance to start anyone over 65 on infliximab? I'm assuming that if you start it at, say, 63 then you'll stay on it for as long as it's needed or continues to work or be tolerated, you won't just be taken off it on your 65th birthday. My consultant mentioned...
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    Eyesight and crohns

    I wonder if anyone has had any eyesight problems, either with the crohns itself or with any of the drug treatments? I've noticed over the last few weeks that my eyesight has altered. I have worn specs for quite a number of years due to age related degeneration, my most recent test was February...
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    Azathioprine and nausea

    Ten days ago my dose of azathioprine was increased from 25mg daily to 50mg daily. I take it in the morning, along with prednisolone and some other meds, after I've had something to eat. I've never been a breakfast eater so having to eat something that early in the day has been a bit of a...
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    Azathioprine and breathlessness

    Today I saw the IBD nurse, she's calling me back tomorrow to tell me whether the consultant wants me to continue with azathioprine at a low dose to see if my body will get used to it (liver enzymes have been raising and I'm suffering breathlessness) or if it will be changed to 6mp. They won't...
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