• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by buttER

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    Diagnosed, undiagnosed, diagnosed, undiagnosed....

    Hi everyone I wish there was a forum for Undiagnosed-Diagnosed-Undiagnosed-Diagnosed-Undiagnosed......you get the picture. I will be on the Undiagnosed section more often, so I wanted to introduce myself. Here is my phantom IBD story. It is a bit long but then every Undiagnosed story is. I...
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    Regular checks if you are taking 5-ASA medicines

    Hi everyone You might see me in this group now and again - I have agreed to be monitor for 5-ASA/Mesalamine. A bit about me: I have left-sided colitis although it is still the discussion if it is Crohns or UC. I take oral 5-ASA (Asacol) 3.2g daily (2 tablets in the morning and 2 in the evening...
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    Relationship Troubles and IBD Support Group

    Hi everyone IBD has come between me and my partner and the relationship is breaking down. It makes everything twice as difficult. I know I am not the only one so I was wondering if it is possible to have a forum for people in a similar position? Or those who have worked through it. Personally...
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    Do I need to know it's a fistula?

    I got the colonoscopy report back from the doctor, and in it he says he thinks the perianal lump I have is a fistula. I assumed it was a cyst. Do I need to do anything about it? The doctor didnt mention it to me at all. The lump does not bother me too much, it does not hurt. It does bleed when...
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    What is reactive colitis? Help!!!

    I saw the GI today and he told me I have reactive colitis: the biopsies from the colonscopies (2012 and 2015) show that something is happening, it says "reactive changes" in the biopsy reports. During the colonoscopy there is visible inflammation and ulceration. He said that means my intestines...
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    IBD, not IBD, who else has been there, done that?

    So..... I haven't got anyone I can talk to about this and I was so mixed up this evening so I need to let it out. I am so glad this forum is here! 2 weeks ago I had a colonoscopy. The doctor told me afterwards I had very mild inflammation in the left side of the large colon and in the ileum...
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    5-ASA and colonoscopy biopsy results

    I am taking Asacol for left sided colitis detected 3 years ago. The symptoms were terrible then, the colitis was "moderate" but the biopsy results were not positive. The Asacol help alot. I still have occasional diarrhea, urgency and nausea but really very mild and not very often (once or max...
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    Help! Do you always have to watch what you eat?

    I can't help noticing that alot of people are talking about food that is bad for them or makes them feel worse. I want to know what is normal - should I be aiming for no symptoms and a normal (unrestricted) diet again, or is that going to be unlikely? I still have mild inflammation in the ileum...
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    Left side or right side?

    Hi everyone When you write something like "pain in the lower right quadrant", is that your right side, or the right side when someone looks at you? Just checking we are not taking different sides!
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    What questions should I ask the doctor?

    I have a telephone appointment with my gastroenterologist this week. I need to be prepared, phone appointments can be tricky. 3 years ago I had a colonoscopy that showed ulcers and inflammation in the colon, the description was left sided colitis with a pattern similar to Crohns - no...
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    Colonoscopy on thursday

    So the colonoscopy prep starts tomorrow evening, scope due on Thursday morning. I am not looking forward to it, but who does? At least I have the luxury of a guest bedroom and bathroom at home so I should not disturb anyone or get disturbed too much. A certain 3 year old might not quite...
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    What comes first: symptoms or abnormal scope?

    Hi there I have had 2 colonoscopies where everything was normal, and one colonscopy where they found ulcers and inflammtion. Yet each time I would have described myself as in a flare (chronic diarrhea/nausea/weight loss/fever). Do you know if the symptoms start and then they have to be so bad...
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    Being tired makes me a bad parent

    Hi there I notice when I am tired I don't have enough patience with my children (they are 6 and 3). I just want them to do what I ask, I don't have the patience for them messing around or ignoring what I am saying or doing things the way they want to do it. And then I feel bad that they get...
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    Does your Crohns move around?

    I have recently been diagnosed with IBD, indeterminate but suspected Crohns. The last colonoscopy showed ulceration of the lower half of the large intestine. I have had periods (months at a time) of illness since I was a child. Sometimes I had terrible nausea and general abdominal discomfort...
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    Tiredness coming off 5-ASA (Asacol)

    I have been taking Asacol 800 slow release tablets for over a year. For the last few months I have been getting joint pain, and I have been fatigued. I talked to my GI, he was not sure if those were side-effects of the drug, or part of the IBD. I have been on quite a high dose, so I have...
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