• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by cagfire

  1. C

    Anyone have Myasthenia Gravis as well as Crohns?

    I've had crohns diagnosed since 1987. This year I was diagnosed with Myasthenia Gravis - this is in the muscular dystrophy family of neuromuscular conditions. For probably the past decade I've suffered with chronic fatigue, always putting it down to my B12 deficiency. It got to the point...
  2. C

    Flour and sugar free...

    I've been diagnosed since 1987 with crohns. I've had 3 resections and a ruptured bowel. I don't have fistulas but I do have largish ulcers according to my latest colonoscopy. For years I've just eaten what I could and tried to moderate or restrict the amount of grains/fibre I ate, but pretty...
  3. C

    Severe insect bite allergy from crohns

    Hey everyone, it's been a couple of years since I was here and I'm going to spend some time catching up and reading back posts! :D I've been ill with a severe allergic reaction to insect bites that saw me break out in blisters, welts and other ugly stuff. Had a biopsy that confirmed it was an...
  4. C

    Anyone affected by alcohol?

    Does anyone have any problems with alcohol? After my second resection I couldn't drink at all because everything tasted as if it was 'off' or rancid. Now, whenever I drink I get chest pains as if I'm having a heart attack and the only relief I get is to lie on the floor until it passes...
  5. C

    Should Dr's be required to be a 'patient' as part of their training?

    I swear some doctors don't know what it is like to be a patient or have some of the horrible tests done to us. I'd like to see doctors required to spend time as a patient in a hospital to see what it's like (anonymously of course). I'd like to see specialists have some of the tests done to...
  6. C

    Diarrhoea - Questran / Phenylketonurics

    Hey everyone, I don't know what treatment regime people have with their crohns and diarrhoea so I'll just discuss mine and how it applies to crohns. I've had 3 major resections of the large and small bowel. I don't have a bag but I do have ACUTE diarrhoea every day which would see me...
  7. C

    Crohns Olympics...just for laughs!

    I've often wondered what an olympic event would be called at an all crohns competition... 1. Shitting through the eye of a needle at fifty paces? 2. The 100metre squirt sprint? 3. The 'gotta find it real quick or else' dunny dash? any other suggestions? Lisa
  8. C

    Crohns and complications...do you have any extra's?

    Does anyone have any of the 'other' complications of crohns? I have inflammation in the joints which at times means I have to use a walking stick or a neck brace. My right knee is the worst and the fingers on both hands. My left little finger is constantly swollen and red from the...
  9. C

    Weight management-no slim young thing here!

    Is there anyone else who puts weight on with crohns? When chronically ill early on my weight plummeted. I lost 10kgs in 10 days at one stage. Over the last few years though my weight has increased even though I've had major non obstructive flareups and had a fairly recent resection. I've...
  10. C

    Sex, Intimacy and Crohns-issues and tissues

    As a 23 year old newly married and newly diagnosed woman in 1987, crohns had a huge impact on my life for some time. It took over a year to become comfortable with my disease, my body and I had a very patient and loving husband who dealt with this by just being there and supporting me. I...
  11. C

    Older, wiser, more in control

    older, wiser, more in control Hi, I'm 42, female, married and been diagnosed with Crohns since August 1987. I lived by my doctors and specialists rules for many years, went to all the support group meetings, cried on many shoulders and spent a long time bemoaning the fact that this horrible...
See more
Top