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Recent content by ChicagoMom

  1. ChicagoMom

    Moving from NG to G-tube--Advice?

    So, my 14-year-old DD has been doing supplemental NG tube feedings overnight since November and we are seeing amazing improvements. She's gained weight (which we've struggled with for like 4 years now), grown taller, and started her period finally. GI feels that she is still early enough in...
  2. ChicagoMom

    Tape bothering skin on cheeks--skin care advice?

    Hi all! My 13-year-old daughter started supplemental NG tube feedings overnight this week and is doing a great job with them so far. Thus far we've been using the adhesive that the home health company delivered to secure the tube to her face, but after just two days I can already see that it...
  3. ChicagoMom

    Insurance won't pay for Peptamen Jr.--any advice

    Hi. My 13-year-old daughter is going to start supplemental NG-tube feedings next week. Made some calls today and found out that my insurance company will not cover the formula which has been prescribed, which is Peptamen Jr. I see I can buy it myself, but wondering if anyone has any advice on...
  4. ChicagoMom

    C Diff

    So, my daughter was diagnosed with C Diff on Saturday. Ugh. She's been on Flagyl since then, but is still not feeling great. She's still having diarrhea and her stomach hurts. She barely has any appetite and just feels crummy. She's on her 2nd day home from school as well (boy am I glad we...
  5. ChicagoMom

    Medic Alert Bracelets--Yes or No?

    I've been looking into Medic Alert bracelets for L now that school is starting soon and I'm just wondering if anyone else has gotten one and found it helpful for their child?
  6. ChicagoMom

    504 Plans--Educate me please

    With school starting soon I'm trying to figure out exactly what I need to do to make sure that L has a good school year. She was diagnosed at the very end of the school year in May so we really didn't do much other than let her teacher know what was going on. She's starting 6th grade in a few...
  7. ChicagoMom

    Delayed Puberty?

    My 11-year-old daughter was diagnosed with Crohn's disease in April so we are still pretty early in this process but I'm just curious about puberty. L's bone X-Ray showed her bone age to be 7 years, so she has a pretty significant growth delay. She's anxious to grow, and several of her friends...
  8. ChicagoMom

    Summer sun protection

    So I already know that I need to limit my daughter's sun exposure this summer due to her meds (specifically 6-mp) and I'm on the hunt for good sunblocks, rash guards, and a great beach umbrella with a high UPF rating. Does anyone have any recommendations? We love going to the splash pad...
  9. ChicagoMom

    Bone Age Study and growth catch-up

    Does anyone have any experience with the bone age scans? L had hers about 3 weeks ago and the results came back with a 2 year bone growth delay. I know that this is ultimately a positive thing since it will hopefully mean we can recoup the last two years of possible growth. I'm just curious...
  10. ChicagoMom

    Teaching a child to swallow pills

    Any advice on teaching a child to swallow pills? My daughter, L (age 11), started on Prednisone, 6-mp and Pentasa this week. The Pentasa capsules are pretty big and she has to take 4 a day. The doctor said I could open them and pour the contents into a spoonful of applesauce or something, but...
  11. ChicagoMom

    11-year-old daughter just diagnosed

    Hi all. I'm Rachael and my 11-year-old daughter L has Crohn's disease. We are still in the very early stages of dealing with this-she just had the endoscopy and colonoscopy last week. We meet with the GI on Thursday to start treatment-most likely prednisone, followed by an immunomodulator and...
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