• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by Crohnadian

  1. Crohnadian

    Surgery procedure as out-patient?

    Hey guys.. I had a surgery for my CD once as an in-patient. Can anybody tell me what the procedure is as an out-patient? My GI isn't being very cooperative.. long story short I have an appointment with my surgeon next week. Does my GI have to prescribe me surgery? Or is this something my surgeon...
  2. Crohnadian

    LDN and post-op pain interference?

    Ive been taking LDN for a while (with mild to no results). Anyways Im looking at maybe having another resection surgery and was wondering.. since LDN is an opioid antagonist and prevents the body from experiencing opioid effects, how would one taking LDN deal with post-op pain? Would I go OFF...
  3. Crohnadian

    My GI decided to stop treatment

    So my GI (with whom I dont get along) decided after 3 years of me taking LDN he decided that its suddenly a pain killer and he will no longer Rx it to me, end of story. Im not on any other medication (other than 5mg pred) and he wants me to go on more trial biologics which I am not down for (Ive...
  4. Crohnadian

    Does your GI clinic treat pain?

    Will your GI specialist/clinic treat your pain?
  5. Crohnadian

    Common cold >>> pain??

    Uggh Ive been doing pretty well on 5mg of pred and LDN lately. Actually the best Ive been in a long time (probably ever.. 10 years..). I came down with a cold a few days ago, and ever since, Ive been having lower left sharp pains. Is it possible that theres a relationship between the common cold...
  6. Crohnadian

    Meds VS lifestyle

    Hey guys so I was in between weekly Humira treatments and starting Stelara. I started feeling better in the interim so I cancelled my Stelara. I feel better than I have in years and I'm only on LDN and 5mg pred. I still have mostly diarrhea and go 5ish times a day for sure. Cramps On occasion...
  7. Crohnadian

    Closed water valve? LOL

    So I thought this was funny and wanted to share with my fellow IBDers. Nothing big, but I woke up at 530am this morning to go to the bathroom. I'm in a flare up, so it obviously wasn't pretty, and I try to flush. CLUNK! CLUNK! NO WATER!! My dad happened to have been awake to let the dog out at...
  8. Crohnadian

    Stelara (Ustekinumab) input welcome

    So I saw my GI again today. It's been a month since my last visit and I'm down to 20mg pred from 30mg. We had raised my Humira from every 2 weeks to every week, and I'm also taking LDN. The combination of the 3? Doing nothing. So my GI suggested Stelara (Ustekinumab). It's a new medication he...
  9. Crohnadian

    Flaring, from another perspective

    I guess this can be considered a vent session but also a laugh. I mean, as much as it sucks, I almost can't help once in a while catching myself laughing at the recurrence of CD flares, seeing myself literally morph from a relatively healthy human being to a twiggy nearly useless skeleton lol...
  10. Crohnadian

    Colonoscopy > pred

    So I had a scope done on Monday. My GI preformed it, and wanted a follow-up today. So I did just that. He said there was inflammation, ulceration, and I've already been on weekly Humira (raised from every second week) for 5 weeks, and 5mg pred for a long time. This is all post-op by the way...
  11. Crohnadian

    Events held at bars?

    Pvt Pvt
  12. Crohnadian

    Reishi (Lingzhi) mushroom

    I wasn't sure whether to place this thread in Treatment or in Diet, Fitness, and Supplements, so forgive me if this is wrongly posted. I'm taking Humira weekly (my doctor upped it recently from every 2 weeks due to a minor flare), 5mg pred and LDN. I was wondering what we all thought about...
  13. Crohnadian

    To treat or to push through?

    I was curious whether you guys and gals (everyone is different I'm sure) 'prefer' (<< I use this term very lightly) to treat your disease until it is well under control, and then get into life (work, school, relationships, whatever it may be), or do you remain with daily pains or other chronic...
  14. Crohnadian

    Job? Can you hold one?

    Can you hold a job?
  15. Crohnadian

    Yes My Lord IBD (sorry.. e-venting)

    Pvt Pvt
Top