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Recent content by crohner000

  1. crohner000

    Doctors with knowledge of traditional and alternative treatments

    I'm wondering if anyone has any advice for finding a doctor, or someone, to help me manage my condition who is knowledgeable and open-minded to traditional AND alternative treatment approaches. I like my GI, but he only comes from a strictly traditional medical perspective, so unless something...
  2. crohner000

    Temporary VS. Permanent Ostomy

    I am just wondering how often and in what cases people end up getting just a temporary ostomy instead of a permanent one. I have heard of people having it temporarily but can't find much on what determines this. It seems that I am headed towards the surgical route, as much as I have been...
  3. crohner000

    Fistula acting strange

    When I was first diagnosed with Crohn's 7 years ago I had a fistula. Remicade was my first treatment and it healed up the fistula, but I've always had what I considered to be a scar there from it. It was an anal fistula, but it comes to the surface of my skin near my vagina. Since then, the...
  4. crohner000

    More Formed Stools when I Eat "Bad" Foods

    So I've been noticing something lately and I'm not sure if it is coincidence or what the correlation is. But I feel like when I eat more recklessly (bigger meals, not being SUPER conscious of foods I know I digest well, eating out more, etc.), sometimes I end of up having really good, formed...
  5. crohner000

    Not liking my options - flare up

    I finished tapering my Prednisone on March 30, and my doctor had told me to reach out if my symptoms got much worse during or after that time (I have an appointment to see him May 3). For the last 4 days or so I have had blood in my stool. I also wake up in the morning with very bad joint pain...
  6. crohner000

    Gas and Mucus

    Right now I'm struggling with a lot of gas and mucus. My stomach just feels really gurgling all the time, but I can't just let it out. I have to be in certain positions to be able to pass gas, and then a lot of times I have to go to the toilet to do it because mucus will come out as well. A good...
  7. crohner000

    Prednisone withdrawal - red/itchy face?

    As of Thursday I am finally off Prednisone after a long 7 months! I'm glad to be off, but I'm also not doing too great to be honest. I have frequent bathroom trips just to pass gas and mucus. Sometimes there is blood, other times it is pink or light brown. But the main problem I'm having that...
  8. crohner000

    Crohn's vs. Ulcerative Colitis & possible future colectomy

    I was diagnosed in 2010 with Crohn's Disease. At the time of diagnosis they said that I was basically showing symptoms from my mouth all the way to my anus. Ever since calming that initial flare down and being diagnosed though, my flares and issues have mostly been lower in the colon, especially...
  9. crohner000

    Tapering Prednisone anxiety

    I've been on prednisone for almost 6 months (40-60mg, mostly 60) and just started tapering last week. I really hate prednisone and was really excited to finally start the process of getting off of it, but I'm starting to get really anxious about it now that I'm actually in the process. The past...
  10. crohner000

    How bad is bad enough to go to the hospital?

    I have been suffering a flare for over 6 months due to Humira not working for me, and then switching to Entyvio which after a very long 5 months of waiting doesn't seem to be working either. The flare has been particularly bad for about the last month or two and I am pretty desperate for relief...
  11. crohner000

    New & forever flaring (need rectal and joint pain advice)

    Hi there! I'm finally joining this forum after using it as sort of a personal crohns google for quite a while now! overview of my story: diagnosed in 2010 at age 17 after having bowel problems for a while that docs were struggling to figure out. Lots of testing for lactose intolerance, etc...
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