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Recent content by CrohnieCarolyn

  1. CrohnieCarolyn

    Strictures

    strictures Just wanted to hear from anyone who has a stricture in the ielium (sp) how long theirs is. Please only if you know you have one and the length - thanks and I wish everyone a flare free day!!!
  2. CrohnieCarolyn

    Upper GI series on Thursday

    So, I saw my nice GI yesterday to say that I thought the Cimzia had finally kicked in but why was I still having so much constipation and long narrow stools and horrible heartburn and just bloated and miserable feeling all the time..he wants to see if my 5-6 inch stricture has gotten any longer...
  3. CrohnieCarolyn

    Pity Party ...come on in and grab a snack..

    Does anyone feel like they are being punished with having to suffer with this disease? Or like you did something in a former life that was really bad? What did I ever do?! I guess there is no answer to that one huh? Just feeling "damn, why me?!" I have so much to do and when I am so tired...
  4. CrohnieCarolyn

    What position does everyone sleep in?

    Just curious...what position is most comfy when laying down for everyone? Since my surgery 11 years ago I sleep on my left side with a pillow rammed into my gut...same if I switch sides...seems to help with the gut discomfort...
  5. CrohnieCarolyn

    Balloon dilation

    balloon dilation Anyone had a balloon dilation of a stricture? I have a 5-6 inch stricture in my ileum that I KNOW is causing most of my problems and I have done some research and just wondered if anyone has had this procedure and how it went and if it helped.
  6. CrohnieCarolyn

    Heartburn

    Anyone have really bad heartburn? Lately I have had the WORST heartburn. In the past I have had this but not for years. I have tried all the over the counter stuff and nothing really works for long. Does anyone have any suggestions? I will have to ask the doctor for something stronger I...
  7. CrohnieCarolyn

    Cimzia injections

    Well, the nurse just left and I managed to inject myself with two rather loaded needles of Cimzia. One in my belly and one in my leg. It went well even though I felt a bit nervous - it is rather a thick liquid so it takes a bit of time getting it all in but I did it! No more driving to the...
  8. CrohnieCarolyn

    Depression

    Just wondering how many people have had depression and or anxiety problems BEFORE you got your Crohns diagnosis...
  9. CrohnieCarolyn

    Let's talk poop...

    Okay, since we have NO modesty left from this lovely disease, I was wondering if anyone, since being on any of the immunosuppresant drugs has noticed their bowel movements are now long and narrow. Most times mine are the thickness of a straw and as long as 2 feet! Sometimes they are wider but...
  10. CrohnieCarolyn

    My Story...

    I was 30 when I started to feel sick and went to the doctor at the college I was attending and she told me I had IBS. I tried everything she suggested and I only felt worse. She sent me to a GI and he told me to load up on fiber and sent me on my way...I felt worse. I went to another GP and...
  11. CrohnieCarolyn

    Remi "Lumps" and swelling

    Well, I now have very sore "lumps" that appear on my body - Two weeks ago I had two on my head about the size of a half a golf ball. Then one on my forearm -feels like I pulled a muscle for the first two days then a more distinct lump appears - I now have one on my shin....This is in addition...
  12. CrohnieCarolyn

    From Remicade to Cimzia

    Anyone changing from Remicade to Cimzia? I am waiting for the Remicade to get out of my system then on October 6th I start Cimzia. The Remicade was doing wonders until I started developing terrible joint pain and swelling. Hoping and praying the Cimzia works as well as the Remicade did...
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