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Recent content by Crohn'sGirl

  1. Crohn'sGirl

    It is becoming permanent and I'm freaking out!!!!!

    So I havent been on in awhile but I know that if anyone in the world will understand my emotions today it will be everyone on here. So today I went and had a flexible sigmoidoscopy. I've had my ileostomy for almost 2 years and today was a check up to see how the Remicade was working on healing...
  2. Crohn'sGirl

    My Crohn's Tattoo

    I have struggled with Crohns for 3 years now and I am finally doing alot better and figured there was no better way to show my change then through my first tattoo. I got the purple ribbon to show the support for Crohns and a butterfly to show that Crohns has changed me into a new beautiful...
  3. Crohn'sGirl

    When to tell the new person in your life about your little friend

    So I have recently begun hanging out with a new group of friends from my new church and one of them happen to be a guy I really like and am totally interested in. So far only one of the couples even know I was ever sick but that's cause they are also family friends. When do you tell new people...
  4. Crohn'sGirl

    Black and blue around stoma

    Ok I need some help from my fellow ostomates. In a 24 hour period I have changed my bag three times due to leakage issues. Last night was a total blow out all over my sheets and clothing when I woke up so that was a great surprise so i changed the bag and thought nothing really of it except that...
  5. Crohn'sGirl

    What was i thinking?

    So last night i went out for my birthday and got drunk. Bad idea for sure! My question is this morning my stomach is killing me and i can't stop feeling like i have to go to the bathroom even with my ileostomy. Any advice to calm the tummy troubles? I should also mention i never drink either!
  6. Crohn'sGirl

    1 Year Ago on Halloween

    It is so weird to think that this time last year I was laying in a hospital bed hooked to IV's requesting pain meds every two hours dreading the fact that I was having surgery in the morning. Since I know I probably wont have time tomorrow to post I thought I would post tonight. Tomorrow, on...
  7. Crohn'sGirl

    Quanteferon TB Test for Remicade

    Hey guys does any one else have to do a yearly TB test for their Remicade?
  8. Crohn'sGirl

    Need some immediate suggestions

    Hey guys, I woke up feeling fine this morning but now I suddenly got this horrible cramping pain in my lower abdomen and pain behind my stoma. I am having limited output in my bag and I've eaten and drank tons of water all ready today so my bag should have output. Also I am throwing up...
  9. Crohn'sGirl

    Reversal

    So guys I'm kinda nervous. My gastro just told me we are going to discuss the reversal in November after a colonoscopy to see how my colon is healing! I'm nervous and excited all at the same time! Have any of you had the reversal? What were the steps to discussing the reversal and what is she...
  10. Crohn'sGirl

    For the newbies

    I was reading a few threads about some people who either just got their stomas or are about to get theirs. I just felt like I should share a few thoughts about mine. I have had my stoma for about 8 months now and I am still adjusting to live with it. There are days like yesterday when all I...
  11. Crohn'sGirl

    Reversal surgery question

    Hey guys, I received my stoma on Halloween of last year and it is reversal. I was wondering if anyone else has had the reversal and if so when did your doctors decide it was okay to reverse it and kinda when did you feel okay to discuss the possibilities? I talk about wanting it reversed and my...
  12. Crohn'sGirl

    Emergencyquestion

    emergencyquestion Hey guys got some trouble here. I've been having a lot of pain from my stoma.allow me to explain the way it happens. I will be sitting or standing and I can feel the stool start pushing through and I get this sharp pain as I feel the stool coming out of the stoma. It is a...
  13. Crohn'sGirl

    Help!!!

    Help is needed from my fellow Ostomates. I have a temp ileostomy and have been doing great since the surgery except for one slight problem! I am gaining too much weight! I have gained almost 40 lbs since the surgery and am starting to look chubby and dont fit in any of my clothes. I also have...
  14. Crohn'sGirl

    Too much weight gain!

    Hey guys so I had my ileostomy surgery on Halloween and when I went in for the surgery I weighed 125 lbs. Now since the surgery I just went for Remicade treatments today and I weighed 163 :( I am not really thrilled with this much weight gain. Any suggestions on how to loose weight with the...
  15. Crohn'sGirl

    Starting 6 MP

    Hey guys so my GI dr decided to put me back on 6 MP. I've only been on it once before for a few days and I was super sick then so it was hard to determine what was the 6 MP and what was the Crohn's. Anything in particular I should be aware about now being on it. She put me on 75 MG right now and...
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