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Recent content by crohnsinct

  1. C

    Heard from Doc today

    Knew it was just a matter of time before something like this popped up. Posting it here given the discussion about O's glucose readings. https://www.cghjournal.org/article/S1542-3565(19)30841-9/fulltext#.Xo_SjOvXhIQ.twitter
  2. C

    Please help - 4 yr old has fissures

    Hey there! I haven't had a chance to re read your whole story but if he has a seton that means he has a fistula, right? Fistula means that the disease type that your son has is considered penetrating. Penetrating disease ='s more severe disease. Young age at onset ='s more serious disease...
  3. C

    Heard from Doc today

    For those of you still playing the Crohn's game. Cal pro is 563.
  4. C

    Heard from Doc today

    LOL! GI wrote to O saying, "between you and I did you drink the night before your labs". Ummmm our entire state is in shelter in place orders so unless we were throwing a family kegger than no. And if we were drinking at home then no need for the between you and me. She doesn't generally drink...
  5. C

    Heard from Doc today

    So GI wrote to Olivia. He is concerned about the liver numbers and just wants her to get them checked again in a month, which is when her infusion is anyway so not really doing anything we wouldn't do anyway. Just thought I would update y'all cuz while I have quit Crohn's pretty sure you guys...
  6. C

    Heard from Doc today

    AST is slightly elevated and ALT is about double. Not too bad. We have a history of bad livers in our family so I watch those numbers. Not too concerned given she had just been on three days of that new med AND she is eating a VERY high fat diet so it could just be the beginning of fatty...
  7. C

    Heard from Doc today

    Blood labs came back. All except liver are within normal. CRP is creeping up and just within normal and up until they recently raised the normal range it would ave been elevated. She was dehydrated so that could explain the normal H&H but still. Liver numbers are elevated but I am...
  8. C

    Heard from Doc today

    Update went in to the GI and he doesn't want to change anything right now because of the pandemic but will wait to see what labs look like. He has told her it is o.k. to stop cholestyramine. So we will see if those mysterious white clumps keep showing up.
  9. C

    Heard from Doc today

    No photophobia, pain or irritation. Just so happens that Uveitis could be a side effect of the drug she is on now so I think if she still has it today I will strongly suggest she mention it to the GI. But there is another thing happening that is puzzling. I posted o the adult forum because...
  10. C

    Cholestyramine and white clumps

    First I apologize that this is graphic. My daughter has been chasing a flare for 4 years now. Much of the time the three GI's she has seen (we moved) have all suspected she has IBS and this is not a Crohn's flare. Last summer, her GI scoped her and found severe Crohn's activity. She...
  11. C

    Silent Crohns

    I am so glad she is coming home! I am so sorry you are having to face this surgery during a pandemic....as id it wasn't concerning enough. We have been sheltered in place since March 13th and restrictions are scheduled to go through at least May 3rd. All of our hospitals have a no visitor...
  12. C

    Heard from Doc today

    She wants to wait and see if it goes away tomorrow. If it is still here, will include it in weekly update. Isn't it fun having "adult" kids.
  13. C

    Heard from Doc today

    Well now it looks like she may have episcleritis not a doctor but that's what it looks like to me. I thought maybe conjunctivitis but she has literally not been out of the house for 2 1/2 weeks. No one else in the house has it and the redness is confined to her eye, no discharge or anything...
  14. C

    Family history of Crohn’s.... anyone??

    no family history but two of my daughters have it as does they cousin.
  15. C

    Heard from Doc today

    Flushable and non flushable wipes are equally as hard to come by. I came across baby wipes one day and the store limited purchases to 1 pack per customer. ARGH! Well if O talks to M about the G tune let's leave out the part about not being allowed to swim with the infection;). I actually...
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