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Recent content by crohnsinct

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    Heard from Doc today

    Hey guys! Nothing much to report except O is gaining weight nicely and doing rather well. She is still on the 45mg loading dose of Rinvoq. At 8 weeks (mid July'ish) she will get labs and go down to maintenance dose of 30mg. Her bleeding has pretty much stopped and she is only having to go...
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    [Extremely depressed] Help - is it possible to stop the med & reverse autoimmunity?

    I have always been the diet proponent on the forum. My daughters have been seen by leading functional medicine docs as well as leading pediatrician now adult GI's for 10+ years. I can tell you without a doubt that there is MUCH research in the diet realm. EVERY GI we have seen has used some...
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    Iron question

    Great idea! In addition to the check intestines light installed in their bellies. You are not so far off actually. There is an at home Calpro test and it is pretty accurate. You read it with an app on your phone. It has been available in Europe for a couple years now. Just waiting for the...
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    Skyrizi (anti-IL23 antibody) Approved for Treatment of Crohn's Disease

    Different people have different drivers of disease. For some it is tnf and either suppressing tnf or making it more difficult for the tnf to wreck havoc works. But for some the Il’s or the JAK’s are the culprits to using those selective drugs works better for those people. To complicate...
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    How to ensure uninterrupted Humira during relocation

    We have moved across the country and two of my daughters have gone back across the country for college in two different areas. Both were on infusions or Humira at the time and we had no problems at all. They came home for school breaks and things transitioned back and forth just as easily. We...
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    MRE experience and RESULTS

    I have only seen one person dx'd with pill cam when the scope didn't reveal inflammation and the MRE wasn't a slam dunk BUT they had sky high inflammatory markers, anemia, were rapidly losing weight, in a lot of pain and throwing up regularly. Because they were so symptomatic, the GI decided to...
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    Iron tablet question

    Other than making sure he is eating foods with loads of iron in them you could also try to cook with iron pots and pans. A little iron leaches into the food. This was a suggestion made to me and it helped push one of my daughters back into normal range. My other daughter who has severe...
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    Anastomotic Configuration in Crohn’s Disease Surgery Does Not Influence Stricture Risk

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    Crazy turn of events for us!

    WONDERFUL NEWS! Also very helpful update for others traveling the same path. Thanks and good luck! I hope we don't have to see you hear again!
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    Iron question

    Spoons work but not for the fecal occult test if it is the stick kind that you dip and send or the card that you brush onto. LOL bribery works…so does threats…nah kidding…maybe...
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    New to hyrimoz (biosimilar to humira)

    Phew! One less thing to worry about!
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    Are your kids physicaly active?

    My two Crohn's girls are VERY sporty. Super competitive, more than one varsity sport, active is many clubs, one playing NCAA softball. My non Crohn's kid swam on high school team and casually swam on her USA Club swim team but did the minimum required to stay on the team. Dropped all athletic...
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    New to hyrimoz (biosimilar to humira)

    I say this not to panic you but lack of nutrition also adds to the inflammatory cascade. He needs to be well nourished so his body can try to heal. If he is malnourished his body will drop the healing function in order to concentrate on daily operations. It is a vicious circle. Disease makes...
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    New to hyrimoz (biosimilar to humira)

    No, no, no…we are not saying the values are extremely high. They are elevated. But CRP and sed rate are not specific to the GI tract. Anything could be keeping those values raised. Even an injury or slight cold could increase those numbers. Please do not be depressed. The good news is they...