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Recent content by Crohnsmomof3

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    What would give you more spoons?

    I have had Crohn's Disease for almost 15 years and am struggling for energy these days (getting a few iron infusions this week and next–that will help). It had me thinking if you could magically get more spoons in a day what would you use them for? Or better yet if people could help you save...
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    Clinical Trial: Filgotinib anyone?

    Is anyone on Filgotinib, a clinical trial medication? I have been on this trial for a few months and it appears I may have been on placebo as I have gotten worse. I am switching to the real drug in about a week (switching to the extended trial because of worsening of symptoms). Was wondering if...
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    What Else? Seriously...

    I have been dealing with back pain for the last few weeks, I had a herniated disc and have been working through that. Started physical therapy today. Just received a call from my doctor with my x-ray results. I found out that I also have mild degeneration in my spine which equals Osteoarthritis...
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    Fatigue is my worst enemy...grr

    Just was asked by my 6th graders friend, "Why are you always to tired?" Ugh. This one has been rough lately. I am on Stelara and maybe that is part of the cause, but seriously I could nap every day. I am getting frustrated with this, anyone else have issues with fatigue as they age? Is it the...
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    Stelara Fatigue and Increased Dosing :(

    I had my regular appointment with my GI this week and he wants to up my dose of Stelara from every 8 weeks to every 4 weeks. He wants to do this because about two months ago I ended up in the ER with a partial blockage. The weird thing is that the partial blockage seemed to come from nowhere. I...
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    First pill cam approaching fast

    I am scheduled for a pill cam next Friday and was wondering what to expect. I am ready for the prep, it doesn't sound that bad at all. I am just a bit nervous swallowing the camera. Has anyone had this before and is it bad going down?
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    Anyone ever have an Enteroclysis?...Nasty!

    Just wondering if anyone has ever had this test before. I should have asked before yesterday when I had the test. It is a type of CT scan where they put a tube in your nose and then feed it to the small bowel. Then they put in about two and a half liters of some sort of liquid into the tube...
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    Methotrexate and lightheaded?

    I am just wondering if anyone has had this while on metho injections. I have only done two injections the past two Fridays. However, today I have been off. Starting with this morning I had a migraine, then took a migraine pill at 5am. When I got up at 7am I was okay, but got real dizzy and...
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    First shot today...nausea?!?

    I just did my first injection of methotrexate today. I am a little nervous about the possible nausea. For those of you who experienced this, how soon after the injection did it start? I am wondering when I might be past the danger zone. I have zofran on hand if need be, but am hoping I'll be...
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    Still diarrhea 4 weeks post-op?!?

    Okay. I am still having diarrhea, I had surgery on December 6th. I am taking a fiber bulking pill (citrical?) and Imodium. No help. I see the surgeon on Tuesday, so I will be asking him a bit more about this. But, is this normal? My concern is that they took out so much of my TI that I am...
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    Incision area: minor redness?!?

    I had a small bowel resection on December 6th and just noticed that in the middle of my main incision is a bit red. Not angry red, just way more red than normal. Of course I notice this on a Friday evening. So, do I call them tomorrow or just go see my GP? It does bother me a bit, itchy and a...
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    Post surgery: how to cough without pain...

    Looking for advice. I had a TI resection this past Friday. I am still in the hospital, hoping to go home in a day or two. I had about 100 cm of diseased and strictured small bowel removed. They removed two different segments. It was laparoscopic. My question is this. I got a tickle in my...
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    Pre Surgery Prep...boo!

    Just wanted to voice how much I dislike this pre-surgery prep. I knew what I was getting into, since I have had a number of colonoscopies before. Just wanted to vent...boo!
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    Planning for an upcoming resection...help/tips PLEASE!

    Due to a recent CT scan, my doctors found that I have fibrostenotic disease in my TI. With a partial blockage. So, I am scheduled for resection surgery on December 13th. I have had the disease for over nine years and thought I would be one of the lucky few to avoid surgery for the first ten...
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    How can you tell if it is scar tissue?

    I was just wondering how GI's or radiologists can tell the difference between scar tissue and inflammation. I had a CT scan a couple weeks ago and the radiologist report mentions inflammation (and some other things pointing to inflammation), but no mention of scar tissue. Now, I was diagnosed...
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