• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by Cucurbita

  1. Cucurbita

    Anyone's child fail 3 biologics?

    Thank you, I think I understood now. I'm not familiar with the forum; you mean this subforum is for parents to find support from other parents, but not the kind of advice regarding treatment, right? If that is the case, I very much apologize. This was my best intention. I didn't pretend to give...
  2. Cucurbita

    Anyone's child fail 3 biologics?

    Hi, I did take into account those aspects. I don't understand how they apply to the current discussion. Most diet therapy studies for Crohn's are made in pediatric patients. Results show diet works better for them than for adults, apparently. Studies for LDN in Crohn's patients have been done...
  3. Cucurbita

    Anyone's child fail 3 biologics?

    Hi Crohnsisct, I didn't pretend to rule out SCD. I'm sorry if it seemed like that; I wrote a very long message so I couldn'd explain every point as much as I'd like to. Otherwise you would know that I do consider SCD sometimes, it's among my armamentum, but not now. Yes, I would include SCD in...
  4. Cucurbita

    Anyone's child fail 3 biologics?

    Hi My little penguin, I don't see how your arguments invalidate what I said. I think I may be missing the point. Certainly we don't know what drugs or what diet will work for a child. Neither we do know it for an adult. This argument works for any non trivial disease, so it's not relevant now...
  5. Cucurbita

    Anyone's child fail 3 biologics?

    I don't recommend the Specific Carbohidrate Diet for Crohn's patiens. It is based in principles or theories that do not fully agree with Crohn's disease ethiology, so any improvement is ''coincidence''; it may help some patients since it is based in real food, with no processed food, and it...
  6. Cucurbita

    Anyone's child fail 3 biologics?

    Regarding the budesonide discussion: It can help to reduce inflammation in the bowels. Since it is almost not absorbed, the side effects are much reduced compared to a systemic glucocorticosteroid. It is available in delayed formulations so it can help ileum and ascending colon, or it can be...
  7. Cucurbita

    Anyone's child fail 3 biologics?

    One more thing that can help him is Low dose Naltrexone (LDN). Ask the doctor if he wills to prescribe it. Usually doctors do not want to prescribe it because it is an off-label use, so if something goes wrong they would not be protected by law. Sometimes they don't even know it or don't trust...
  8. Cucurbita

    Anyone's child fail 3 biologics?

    I don't think entyvio will help him much. It is usually highly inefficient compared to anti TNF or anti interleukin 12/23 (when you fail several biologics, statistics show that remission rates for any new biologic you try are much lower that if you were naive to all biologics). And it acts...
  9. Cucurbita

    Anyone's child fail 3 biologics?

    Hi, I read the current treatment according to your profile: Humira 40mg weekly Azathioprine 75mg daily Vit d 2000IU Ferrous sulfate 325mg twice daily Zinc sulfate 220mg twice daily Zyrtec 10mg daily Probiotic It says Humira, so it can't be up to date. But I will provide some advice regarding...
  10. Cucurbita

    Omeprazole IV while on prednisone IV?

    Thank you very much for your good wishes. I'm better now. You are right. EEN didn't work. After a month and a half, I had to be admitted to the hospital. A few days before, I also had a nephritic colic that worsened the situation: I lost further weight and weakened even more. My doctor wanted...
  11. Cucurbita

    Omeprazole IV while on prednisone IV?

    The doubt was resolved by the doctor, who visited me earlier today. She said that she knows that a lot of doctors tend to prescribe omeprazol too often without a real justification. But she said that in this case it is right and necessary to take it, because the dose of corticosteroids that I...
  12. Cucurbita

    Omeprazole IV while on prednisone IV?

    Hello, I was hospitalized yesterday (due mainly to: persistent 38-39°C fever of suspicious origin, and also they want me to gain weight because my BMI is 16). They are giving me prednisone IV (intravenous), dosage is 40 mg in the morning and 20 mg in the evening. The nurse came today's night...
  13. Cucurbita

    How does mucosal healing occur?

    I have not "evidence" but I do also believe that healing occurs from the outer layers, because one can have mucosal healing but not transmural healing. However, in this case, my doctor was indeed talking about the locations that are healed first, I'm 100% sure. She meant that, e.g., generally...
  14. Cucurbita

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    I also suffered a salmonella infection before I was diagnosed with ileocolonic Crohn's. My initial flare started with vomiting, night sweats and fever. As if that wasn't enough, months after my diagnosis I was again diagnosed with a salmonella infection. I was a child and I don't remember...
  15. Cucurbita

    How does mucosal healing occur?

    I've been on a flare since October. When my doctor checked the MRI report, she said: "This is a very good sign! Now you have inflammation only in the last part of the large intestine (rectum, sigma and a portion of the distal colon)". I asked how it was, if my affectation is indeed ileocolonic...
Top