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Recent content by DCCrohns

  1. DCCrohns

    Stoma and medication

    Mine were white, as the coating and presumably some of the pill had been released.
  2. DCCrohns

    Stoma and medication

    Hope the timing change works for you. When I had them pass, the pill was usually the same shape but at various sizes depending on time passed (formed but soft). Occasionally I see residue in smaller bits not with form that I suspect is some but also know not all of the pill material is the drug.
  3. DCCrohns

    Stoma and medication

    Ileostomy here and just started Rinvoq in the past few weeks. I have a fast track and was passing pills (or ghost pills) but have had more luck switching to taking at night and rarely see a trace and, even if so, hardly as voluminous or pill-shaped. Might be worth a shot (consult with your doc...
  4. DCCrohns

    Morning/Daytime Breakfast Diet Advice

    My go-to breakfast that is a little of a take on what you do is an english muffin toasted with half with a little butter and jam and the other with a wedge of Laughing Cow cheese. It's not too heavy but gives me enough to get going. I also am a fan of the Muscle Milk pre-mixed shakes and often...
  5. DCCrohns

    CDC approved booster of COVID 19 for immunosp

    Got my results of antibody draw this week (taken after third dose) and went from 43 after first dose to 176 after third (timing didn't have me tested in between). Seemed crazy high but glad that others are in the same range (since it's off their charts). Will be interested what they learn longer...
  6. DCCrohns

    Covid vaccine 3rd dose?

    Just had my Prevent Study draw today and had my third dose on September 1. First draw had me in the highest segment of the histogram so hoping for the same this time. Having to have surgery (and travel for it) later this month so want all the protection science can give!
  7. DCCrohns

    Combo therapy and covid vaccine, anyone had a serology test confirming immunization?

    I enrolled in one of the studies looking at IBD patients and vaccine response. Had my second dose in early April and have had one antibody level test so far...showed antibodies and was in the highest range among those they tested. I'm on Stelara (every 4 weeks) and 150mg Azathioprine and early...
  8. DCCrohns

    Stem Cell Therapy

    sounds like we may be in the same trial! I have not been unblinded yet but did have a setback after my first treatment that kind of took me back to where I was before. Wishing you all the best and hoping for healing for both of us.
  9. DCCrohns

    Fistula flares with bleeding and hardness off and on, when to head to an ER?

    So sorry you are going through this. Fellow fistulizing CD patient here (who just had issues and an EUA to assess/resolve). If you have this type of Crohn's, I definitely recommend building a relationship with a CRS you trust who can help you assess and work with your GI doc. I have been on...
  10. DCCrohns

    Stem Cell Therapy

    Thank you!! 🙏
  11. DCCrohns

    Stem Cell Therapy

    As of last week, yes! Sadly the first trial did not result in healing for me. However, I just began a new trial (slightly different approach with stem cells) last week at Cleveland Clinic. I am currently in the period where participants don't know if they received placebo or the treatment (last...
  12. DCCrohns

    Stelara and Neuropathy

    Thanks for the replies...and glad it resolved. I have been on Flagyl on and off over the years for longer stretches but this definitely is the longest stretch. Hoping to feel toes again soon...and not backslide with my CD.
  13. DCCrohns

    Stelara and Neuropathy

    Timely that I see this, as I am on Stelara currently (every 4 weeks), in addition to Azathioprine (150mg/day), Cipro (2x day) and Flagyl (2x day). A few weeks ago I noticed numbness in my right toe and to a lesser extent in my left. Last week it had noticeably spread to my other toes. I reached...
  14. DCCrohns

    Combination therapy: stelara & imuran?

    You can develop antibodies to Stelara (per manufacturer, <3% do). Have your Stelara levels been checked by chance? I think there may only be a lab or two that does this but it may be helpful to know how your body is metabolizing it. I think once it isn’t working, adding Imuran or another may...
  15. DCCrohns

    Anyone have experience with 80mg Humira weekly?

    I am trying to remember exactly when I switched to Humira, but at least four years (with frequency increasing over time). Stelara has been okay for me so far (I'm on it every 4 weeks)...also on Imuran and ongoing antibiotics (fistulizing Crohn's).
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