• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by Dukeis

  1. Dukeis

    Strange feeling around my stoma

    For the past several weeks I have had a strange feeling around my stoma. It feels like something pushing inward and at other times something pushing outward. I won't say it is painful, but it is annoying at times. Everything around the stoma looks great, no irritation or bulging. I am using a...
  2. Dukeis

    Stoma revision

    Has anyone had to have a revision of there stoma. My stoma seems to be leaning more and more to the left. I'm now having trouble keeping my wafer from leaking. I have tried convex wafers, barrier rings, paste. I've used half of a ring to try and stand it up better as suggested by my ostomy...
  3. Dukeis

    Post op question.

    I'm 11 weeks post-op total proctocolectomy today. For the past few days I have been having some strange feelings and pains in my abdomen. It feels like at times I have a belt around my stomach that feels tight. I'm also having a stabbing pain at times, but not to often. I was wondering if this...
  4. Dukeis

    Stoma & Appliance question

    Now that my abscess is resolved a lot of the swelling has also. Now I have creases on each side of my stoma at 3 and 9 o'clock. Also my stoma is dipped to one side somewhat. I say it is like my stoma sits in a valley sort of. I'm looking for ways to get the best seal I can get. I tried a...
  5. Dukeis

    Coloplast question

    I got some samples of coloplast bags and just got around to trying them. I have the drainable bag with the valcro on the bottom. I really like the way these bags drain. Much easier to clean then the Hollister bags I was using with the clip. My problem with the coloplast is that the valcro has...
  6. Dukeis

    Two Piece System?

    I have a question about a two piece system. My stoma has a crease on each side of it at 3 and 9 o'clock. I'm using a one-piece bag right now. When I put the wafer on it dips inward where those creases are. I was wondering if it is a problem with the 2 piece getting the bag to seal right if there...
  7. Dukeis

    Post op question.

    I was wondering how long after protocolectomy surgery does it take for your rear end to start feeling comfortable to sit again? I'll be 3 weeks post op on Wednesday and it still hurts like hell to sit. They opened the incision on my rear last Friday and packed it to help with the drainage. That...
  8. Dukeis

    Forgetting how old you are?

    Has anyone forgot how old they are? I said something to my wife tonight about being 49. She looked at me and said you goofball you are not 49 you will be 49 on your birthday this year. I don't know why I thought I was 49 already. I believe I have mentioned in post here that I was 49. Goodness...
  9. Dukeis

    Interesting incite from a 12 year old

    We have been trying to prepare our younger 2 children about my upcoming surgery. They are 12 and 9. We have explained about the bag, nothing to graphic; just don’t want them to be in total shock. This morning my 12 year old comes up to me with the orange container in her hand. This is one of...
  10. Dukeis

    Joining the stoma club

    Seen the Colo-rectal surgeon yesterday. Really liked the doctor. Surgery is scheduled for March 20th. This whole thing still seems a little hard to wrap my head around. Yesterday did put it all into perspective though sitting in the waiting room. The surgeon sees his patients in the cancer...
  11. Dukeis

    J-Pouch Questions

    I haven’t talked to the surgeon yet, but I seen my GI this past Monday. He told me he believes I would be a candidate for a J pouch. I’m not sure about this and have some questions for people who have and are actually living with a J pouch. The doctor said best case I would have 4-6 bowel...
  12. Dukeis

    Update and another question

    Ok, I got the date for my surgery consult, It is on January 29th. I was told that this surgeon does most of his surgeries by Robotic assisted Laparoscopically. Has anyone had their surgery done this way. From what I have read it sounds as though this cuts the recovery time and also greatly...
  13. Dukeis

    Surgery Advise

    I posted this in the surgery forum, but I thought I would post it here since I've posted here before. Ok I got the results from my colonoscopy that was done right before Christmas and the results are not what I had hope they would be. What they called indefinite for dysplasia in June of last...
  14. Dukeis

    Surgery Advice Needed

    Ok I got the results from my colonoscopy that was done right before Christmas and the results are not what I had hope they would be. What they called indefinite for dysplasia in June of last year is now Low Grade dysplasia. So my GI recommends I have a total proctocolectomy. Yes, I knew this may...
  15. Dukeis

    Wow! I get to prep tomorrow!! Fun! NOT

    Well, I get to prep tomorrow and scoped Wednesday morning. I'm dreading this scope I think more then any off the countless ones before it. It may sound strange, but I sure hope I get to be scoped many more times in the future. Hopefully what they called "indefinite for dysplasia" in June was...
Top