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Recent content by eleanor_rigby

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    Azathioprine and alcohol

    Wow this is an old one of my threads. I can confirm in the last 6 years I’ve remained on azathioprine at 50 mg. I have had occasions where I have got black out drunk and been OK. However the hangovers are god awful. I rarely drink except on occasion.
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    Azathioprine Experiences

    Hello, I’ve been on azathioprine for 5 years and one thing that struck me in your post is that it reads like you started on 125mg? That seems to me like a very high dose to start on. I only started on 25mg and then worked up to stronger doses only as my body got used to it, and checking no...
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    Low B12

    Thanks Lisa, were you tested for pernicious anemia? Or is the deficiency associated with your Crohn's?
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    Low B12

    I have been diagnosed with low b12 (my level is 148). I am struggling to understand why this may be. I don't think it is my diet as I eat meat daily. I would be surprised if it is due to my crohn's. While my crohn's is in my terminal ileum, where b12 is absorbed, I am in remission and my last...
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    Being Told to go on Imuran after surgrey

    I had Crohn’s unknowingly for about 5 years before it caused a perforation, therefore since my diagnosis I have always known I was going to have to risk drug side-effects than risk this disease. I’ve been on imuran now for 5 years, and it’s been 10 years since my surgery so it’s clearly made a...
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    Question regarding isolated small bowel Crohns and progression (and diet)

    I have heard of people who have needed to get a diagnosis via a pill cam so that could be an option. I have the thing you describe with the blunted duodenum however my disease is visible at the terminal ileum. They did wonder whether coeliac disease may cause the upper GI problems. Have you had...
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    I got my PhD today

    I’ve had Crohn’s since a teenager (though undiagnosed for quite some time). I had a horrible time getting a diagnosis and severe Crohn’s that required emergency surgery to treat a perforation 10 years ago. I’m 32 soon and today I passed my viva and have been awarded my PhD! I now work full-time...
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    Weight gain

    Thank you :-) I achieved it through always eating breakfast, lunch and dinner (used to always miss breakfast) and through regular snacking throughout the day.
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    Weight gain

    Hello! Since lockdown (March 2020) I have slowly gained weight and now weigh the most I have ever in my life! My BMI is currently about 21.
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    Update on my life

    Hi Emma how are you?
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    Family history of Crohn’s.... anyone??

    My dad has ulcerative colitis and I have crohn's.
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    Update on my life

    Oh Emma you have really been through hell and back :( I am grateful for your updates as I think it is interesting to follow people's progress over a long period of time, particularly as so many of us are diagnosed so young. Hopefully regardless of treatment, this surgery should put you in good...
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    High Calprotectin, Negative MRI

    Hello, I am sorry to hear about your difficulties. I have had a completely normal MRI and CT scan but my colonoscopy showed inflammation and ulcers. The colonoscopy is the gold standard for showing the real picture of what is going on. I feel you will have a better idea afer this.
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    Looking for direction - just got blood results

    I would pursue the following blood tests: CRP ESR B12 (and possibly other vitamin or minerals) It sounds like you have a weakened immune system - perhaps you are deficient in something. Could you have been exposed to a virus and now experiencing post-viral fatigue? A friend of mine had this...
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    Immunomodulators may not be necessary alongside stelara

    https://www.healio.com/gastroenterology/inflammatory-bowel-disease/news/online/%7Bcc28cb13-0ad1-4b40-9d5e-ee6fa2404dae%7D/immunomodulators-not-necessary-with-long-term-stelara-therapy-in-crohns
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