• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by EmmaLou

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    On Humira and trying to shift a cold

    After being told I was coming off Humira, I had a call last week to tell me to take the next dose as my neutrophil count was just back within range. I took it on Saturday just gone. I've had a cold for about three weeks and now have a raging sore throat to go with it. I've tried Lemsips for...
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    Spreading the word through Christmas cards

    This year I've bought my Christmas cards from Crohn's and Colitis UK. I figured it was a good way to raise awareness among family and friends. I'd be buying cards anyway, and least the money spent might do some good this way! This is the link for anyone interested...
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    I hate fatigue

    Greetings, people :) After a few days of actually having some energy, today has been a huge step back. I made it through the morning at work, but now even keeping my eyes open is a challenge. It feels a lot like plugging something in to charge over night and looking at it in the morning...
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    About to start Budesonide

    Greetings from Nottingham! I've been on Humira for about two months, and my GI and the IBD nurses are not at all happy with my bloods (neutrophils very low and inflammation unacceptably high), so am being taken off that and put on Budesonide until he can make a decision about further treatment...
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    Humira failed and already had surgery

    Hello! I started on Humira first after two admissions in July but then ended up in emergency surgery on 1st August. I have a stoma (hopefully temporary) that isn't settling, and today got a call from an IBD nurse telling me to stop the Humira because my bloods are 'deranged'. I assume that...
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    Returning to work

    Hello! I had a stoma formed on 1st August during emergency surgery. My TI was removed because of nasty Crohn's in it and an abscess. My GI and surgeon are hoping to reverse it in the next year (lots of problems with drinking and liquid output leading to dehydration). I've been off work...
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    How quickly does it work?

    Hello! I'm sure this has been asked before, but how long have people found it takes Humira to work? I first started taking it in July whilst in hospital, but stopped after the loading dose because ended up in emergency surgery in early August. I finally started it again on Monday. I've...
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    Leg weakness and tremors

    Hi, all I have Crohn's. I was on pred for four months trying to control flares, with three hospital admissions during which I was on IV hydrocortisone in between. I was experiencing a lot of muscle weakness in my legs (they actually gave way a few times), and developed a tremor in my hands. I...
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    New to ileostomy life and struggling

    Hi, all After being admitted through A&E on 26th July, I had emergency surgery (turned out to be life-saving) on 1st August and was left with a stoma. Turns out the Crohn's was doing a good job of killing me and the medication wasn't working. The surgery was unplanned, and waking up with a...
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    Newly diagnosed new member

    Hello! I've recently been diagnosed with Crohn's after a year of back and forth with my GP. Having always being over weight, Crohn's wasn't considered when I started presenting at my GP and dentist with severe mouth ulcers. After dropping six stone in one year, my GP referred me to a GI...
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