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Recent content by Entchen

  1. Entchen

    Tapering prednisone

    Hi Floss: In the past I have simply stopped taking the drug once I reached 5mg in the taper. However, your idea to take your time reducing from there makes sense, provided your medical team knows you are taking it alongside the infliximab (just so everyone is in the know). Your pharmacist is one...
  2. Entchen

    Had a bowel resection 3 years ago

    Yeah, you're so right: it's a bizarre enough thing to have happen that I definitely feel better knowing I am not alone. Mine happened to me in the fall, before my first surgery, BUT at that surgery they found a ton of adhesions that had previously developed from the Crohn's disease itself. So...
  3. Entchen

    Had a bowel resection 3 years ago

    I had this happen once or twice in the fall during a flare and have no idea what it was! Felt awful for a few seconds and then it was gone.
  4. Entchen

    First JAK Inhibitor Approved by FDA for Treatment of Crohn's

    That’s a fair question. The answer from the literature (I’m away from my laptop but I think I have the references somewhere) is that what gets labelled a placebo effect is more likely just one small part genuine placebo effect (belief) and one huge part regression to the mean (passage of time)...
  5. Entchen

    Methotrexate for inactive Crohn's

    No, not a single one! I am clearly bad at deciding when something is an emergency, but I do monitor my symptoms and there was nothing at all. I do hope you are taking your time thinking about the risks and benefits of surgery, though. And remember that meeting with a surgeon does not mean you...
  6. Entchen

    Methotrexate for inactive Crohn's

    Appreciate the well wishes. It’s a bit up & down, but more up than down in the last couple of weeks and I have been able to do some socializing and a LOT of walking (although, disclosure, today sucks—feels like active Crohn’s all over again :rolleyes:). I’m going to ease back into work starting...
  7. Entchen

    Methotrexate for inactive Crohn's

    Hiya: I’m sorry you are going through the wringer. Yes to the chance of a domino effect, but it sounds like the risk:benefit ratio favours that over the risks from living with the scarring and bowel dilation. You may be at increased risk of a blockage (ask me how I know 😬), especially with your...
  8. Entchen

    Small Bowel Resection

    Hiya: I haven’t been in the forum for years but (1) hi, and (2) I /did/ have an ileocolic resection in January. What surprised me was the amount of damage that was found but also that the healing time is still roughly on schedule anyway. Between the CT scan showing fibrotic stricturing with no...
  9. Entchen

    Hot sauce...

    ...is not Crohn's friendly, at least not today. Noted. :shifty:
  10. Entchen

    Hit the (Treatment) Sweet Spot

    Hi all: 150 mg: Crohn's spread to a new part of digestive system, developed 2 fistulas. 200 mg: Looked like mild dementia -- confused, forgetful, making mistakes left and right. 175 mg: Ahhhhh! Relief! It hasn't been very long, but things are really turning around. I would have been in...
  11. Entchen

    Mental Status Changes (Accompanying Increase Dose)

    Hi all! I haven't been on the forum in the past few days as the page is very unstable when I log on using my desktop -- flickering and the page refreshing every 1/2 second or so. How bizarre! Speaking of bizarre, I was advised this morning by my pharmacist to immediately stop 200 mg Imuran...
  12. Entchen

    It feels so normal now

    So this morning I was feeling queasy (I've been lightheaded and a bit dizzy on and off for a few days now). Threw up once or twice and then left for my class. Got to campus, threw up another four times. Dosed myself with more ginger (and breath spray!), re-did my makeup, and taught class. I...
  13. Entchen

    Did your small fistula heal on its own?

    Hi, all A little informal data gathering request. If you have had a small perianal fistula (or more than one), did it heal on its own? Reason: I have a small perianal fistula. My GI has suggested we wait a little longer to see if it heals on its own (before exploring treatment options). I have...
  14. Entchen

    Prednisone Side Effects Poll

    A poll attempt for Crabby Relish. Edit: ...er, for Keona!
  15. Entchen

    Skin irritated above abscess/cyst

    Hi: I am awaiting results of a recent MRI; we are not sure whether I have a fistula or a pilonidal sinus. Either way, the "hole" has not been too uncomfortable -- some swelling, lots of drainage, that's mainly it. This morning, however, I discovered that the skin about 1 inch above the "hole"...
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