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Recent content by EvieBaby

  1. EvieBaby

    Still no further forward

    Since my last update, I sent my complaint letter to the chief executive of the hospital and I'm still awaiting a response. In the meantime, I've still had no treatment and I'm still really struggling. I had to see my GP today but I am still having massive urgency, but only passing gas, blood...
  2. EvieBaby

    Why will no one listen to me???

    I have been really very ill and having a flare for the last week or just over, and have been trying to hard to get an appointment with the IBD team at the hospital I'm under. I eventually got given an appointment today at 3pm. which I've just got home from. The nurse on the phone told me to...
  3. EvieBaby

    Finally managed to get an appointment..

    After 7 days of struggling and trying desperately to get someone to listen to me and help me, I have had a call back from the hospital IBD team who are meant to be looking after me. The woman I spoke to clearly had no idea of what had been happening the last few days, so there's been nothing...
  4. EvieBaby

    It's been a very long time but I'm back here again

    Hi everyone, I feel like I'm a new member here I haven't been on in such a long, long time. So I thought it best to reintroduce myself because I can see I'm going to be on here a lot more in the coming months. I was diagnosed with crohn's in 2005 when I was 26, and now I'm 39 and a heck of a...
  5. EvieBaby

    Scared about starting MTX

    I've read a lot of posts on here, a lot of information on the Internet, and asked my doctor about this, but my consultant is wanting to start me on MTX. I've tried almost everything else, and I'm currently on Infliximab but nothing else. It sounds like a really scary drug to have to take and...
  6. EvieBaby

    Question about a fistula

    I've had a fistula for a long time and 2 years ago I had a seton put in. Not much happened but in August while on holiday it started draining pus and was painful. It eased after a couple of days and that was it. But yesterday it started doing the same again. The area around it is swollen and...
  7. EvieBaby

    Changes to food that makes me ill

    I've generally always had a good feel for what I can can't manage to eat so that I don't end up in the bathroom all the time. Just recently I've found that eating white bread is disastrous. I didn't really have any on holiday and when I got home I made a sandwich for work and I was in the...
  8. EvieBaby

    Fistula Problem

    I'm at a loss at the moment as to what I can do about this. I had a seton 2 years ago to drain a fistula and I've never had any problems. I was away on holiday last week and a similar area got very swollen and inflamed, was bleeding like crazy and oozing. I emailed my doctors advice line...
  9. EvieBaby

    Been to the bathroom once!!!!

    This is like an actual miracle!! I've been to use the bathroom just once today and that was when I first got up. I've eaten normally, taken the usual medication and I've had no urge to go whatsoever. I'm still exhausted and my back hurts but the fact that I've jade a day off work and not spent...
  10. EvieBaby

    Exhaustion is just getting worse

    I think a lot of us know that tiredness is a really bad effect of having this stupid disease. But just recently my exhaustion levels have been unbelievable. Every day, between 4-5pm, I literally feel like I could fall unconscious I'm that tired. My body aches, my head feels all wooly and my...
  11. EvieBaby

    Admission about steroids

    Since I was started on Infliximab I've struggled so much to lose weight. I've done all the weights watchers and diet plans, counted calories etc and have never been able to lose more than 4/5 pounds before putting it back on again. I've been asking for nearly 2 years if there is a steroid in...
  12. EvieBaby

    Crazy moment!

    I just have to get this off my chest. I had a colonoscopy last weekend and since then I just cannot stop passing wind and urgently needing to go to the toilet. Today, I have actually used a whole entire toilet roll by myself!!! This is so unnecessary!!! I am actually kind of laughing to...
  13. EvieBaby

    Genuinely scared

    I had my colonoscopy yesterday and it was horrible. I've had them before without problem but it had to be stopped halfway through because there was another severe narrowing in the bowel. They tried to pass the camera through the narrowing but it was so painful I begged them to stop. Afterwards...
  14. EvieBaby

    Need some ideas!!

    I'm currently on my second round of moviprep and I swear to God I cannot drink all this. It's absolutely disgusting. I'm chasing it with cordial which is making marginally easier but I know I can't get the whole lot down. I'm tired, hungry and feeling so peed off.. how can I get this down??
  15. EvieBaby

    Another colonoscopy

    I've received my appointment through for yet another colonoscopy. I think I've had about 7 in the 10 years since I was diagnosed and I can't even begin to tell you how much I hate it. I've been given moviprep to use and even just looking at the packet makes me want to throw up. Last time I...