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Recent content by exit4

  1. exit4

    Flaring question

    Everyone is different. I had luck with stopping a flare with just a 7 day prednisone course, and sometimes it took switching to another biologic to go in to remission. You must be "on something" all the time to keep inflammation down.
  2. exit4

    Turmeric drink?

    Turmeric did nothing for me and actually made my dria. a bit worse. After researching more about - it helps with inflammation if turmeric is a permanent and a life time part of your diet - like people in India use turmeric as soon as they stop breastfeeding.
  3. exit4

    Using Stem Cells To Treat Perianal Fistulas

    Update on my stem sell clinical trial - it was a double blind study, donor stem sell injected along the fistula track and suture closure of internal fistula opening. Unfortunately, it did not work for me - lots of swelling and pain followed with increased draining. I do not know if I receive a...
  4. exit4

    Stem Cell Therapy

    Update on stem sell clinical trial - it was a double blind study, donor stem sell injected along the fistula track and suture closure of internal fistula opening. Unfortunately, it did not work for me - lots of swelling and pain followed with increased draining. I do not know if I receive a...
  5. exit4

    Stem Cell Therapy

    I am in the process of getting a stem sell plug If all goes well It will be done on Feb 28. https://newsnetwork.mayoclinic.org/discussion/promising-application-for-stem-cells-crohns-complications/
  6. exit4

    Can I Have a Pet?

    Love my dog - can't imagine my life with out!
  7. exit4

    New no knot seton for comfort

    I am happy to report that my new no knot seton has been put in and I am very happy with it. The place that distributes this seton is in Boston area. I was able to get a free sample and my surgeon replaced the old rubber band seton. The company name is AMI and contact # is 781 990 1806.
  8. exit4

    New no knot seton for comfort

    I just received a new no knot seton - it;s a brilliant idea -instead of a knot its a smooth tube with female to male connection. After a year finally convinced my surgeon to put it in. It;s so uncomfortable with the knot moving up and down there and tearing my fistula skin.
  9. exit4

    Draining Seton -- lots of pain normal?

    I am having a no knot seton put in in a few weeks - it has no knot - just smooth tube with male to female connection. Leaving with a seton knot is so uncomfortable!
  10. exit4

    Lump next to seton

    I have had pockets like lumps near seton on the outside. Its a collection of the draining from fistula. Sometimes if the fistula output is a bit thick -it's possible to happen,. Sit's baths as many as you can will do can help, if they do not help, you may need to see a colo rectal surgeon to...
  11. exit4

    Cholestagel Colesevelam to treat Diarrhea

    Cholestagel off label use is not a good idea - pancreatitis reported after use. Concentrate on reducing colon inflammation - inflamed colon - not absorbing liquids - Diarrhea.
  12. exit4

    LIFT procedure/advancement flap/Crohn's - head's a bit of a mess!

    Do you have a definite Crohns diagnosis? This procedure involves total fistulectomy, with removal of the primary and secondary tracts and complete excision of the internal opening - poor success in patients with Crohn disease or acute infection.
  13. exit4

    LIFT procedure/advancement flap/Crohn's - head's a bit of a mess!

    The lump may mean you are developing an abscess. CT scan maybe needed and exam by a colorectal surgeon. I had a LIFT procedure - did not work, fistula re opened. Advance flap has a very low success rate.There are a lot of research going on. Stem cell, and the regenerative medicine will begin...
  14. exit4

    Why Don't GI Doctors Take The Role Of Diet Seriously?

    I did a lot of unconventional stuff to see if something might help. Things like homeopathic remedies (which I now realize is just expensive water), dream analysis, a Aervedic diet, acupuncture, Probiotics, prebiotics, gum mastic, licorice, special fiber, glucosamine, L-Glutamine, flax oil, S...
  15. exit4

    Diet Help and Advice

    I did a lot of unconventional stuff to see if something might help. Things like homeopathic remedies (which I now realize is just expensive water), dream analysis, a Aervedic diet, acupuncture, Probiotics, prebiotics, gum mastic, licorice, special fiber, glucosamine, L-Glutamine, flax oil, S...
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