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Recent content by GirlwiththeCurl

  1. GirlwiththeCurl

    Iron question

    Thanks for all your responses, everyone. I am currently totally overwhelmed and the transfer process is not going particularly smoothly. L's had an appointment and we went again for a procedure in radiology (MRCP) but didn't see anyone except a tech (well, I didn't). We've had trouble getting...
  2. GirlwiththeCurl

    Iron question

    And I'm back. Having written a note to say how much better L is doing a few weeks ago, now she appears to be in a flare. Diarrhea, blood, frequency, and it's been going on for a while but she didn't mention it until recently (when she started seeing blood regularly, I guess). Furthermore, we're...
  3. GirlwiththeCurl

    Iron question

    Hey, all, Popping in to say that L's ferritin is much much better (it was 37 at her three month draw and we're due for another one soon) after taking oral iron supplements for a few months. It really must have been straight up iron deficient diet that caused her issue. Her energy is a lot...
  4. GirlwiththeCurl

    VEO CROHN'S DISEASE

    I don't have much to add, except that I agree with mlp that veo-ibd is different from usual ibd, and your son may need to be seen, if possible, by a doctor who specializes in it. I'm sorry your son is going through this. It's awfully hard on the family, too. I hope you all can sort this out...
  5. GirlwiththeCurl

    Heard from Doc today

    That sounds miserable. Are home health visits or telemedicine consults possible? I guess I'm just wondering if the new doc could order her something like that so you don't have to go back to the old one.
  6. GirlwiththeCurl

    Iron question

    Well, the hospital finally got L's hemoccult cards and they were negative. Doc says, oh good, she doesn't have GI bleeding. Just keep on with the iron supplementation. While I do feel this is likely to be dietary, I'm not totally satisfied with the response (no rechecking iron levels? No...
  7. GirlwiththeCurl

    Iron question

    Aaaaand the hemoccult cards still haven't shown up at the hospital. It's been 11 days since I mailed them. The first sample is already out of date according to their guidelines. I feel like we've experienced a lot of hang ups over the years in getting tests done and getting results to the right...
  8. GirlwiththeCurl

    Iron tablet question

    According to her, she didn't get tired as quickly as usual when she was at a friend's house, but I haven't seen any big obvious jump in energy. 🤷🏼‍♀️ If she's got slow GI bleeding going on, I'm not sure how much the tablets will help until it's addressed, but we're waiting on test results for that.
  9. GirlwiththeCurl

    Iron tablet question

    My daughter just started taking ferrous sulfate tablets about 5-6 weeks ago. I was very concerned about how she would tolerate them, but they don't seem to be bothering her at all. (She went off a PPI at the same time which did cause problems, but since restarting that she's been fine.) So...
  10. GirlwiththeCurl

    Iron question

    Yes, it's the little hemoccult cards so we're stuck with the sticks. Bribery works!
  11. GirlwiththeCurl

    Iron question

    Bribery!! I bet that'll work. I'm going to offer to pay her--with a bonus if she remembers for the next two days.
  12. GirlwiththeCurl

    Iron question

    Good grief!! This is the second day in a row L has forgotten to collect a sample (or actually, let me collect a sample). She is often distracted and I do believe that she really has forgotten--though if one is concentrating on not thinking about it it's easier to forget. She one time she did...
  13. GirlwiththeCurl

    Iron question

    We got the hemoccult cards last week, but last week was crazy so we're just now to the point of getting samples. And now L won't discuss the gathering of samples because it's embarrassing. 🤦🏼‍♀️ She hasn't had any trouble tolerating the ferrous sulfate, though, so that's good.
  14. GirlwiththeCurl

    Iron question

    Nothing yet. I'm still waiting on the fobt cards to arrive. If they're not here by tomorrow I'll send them a message.
  15. GirlwiththeCurl

    Iron question

    Yes, L seems to have notable rebound acidity when we try to take her off omeprazole. She might just have to stay on it, or maybe taper off it slowly (I asked about tapering and the nurse told me they didn't need to taper off omeprazole, but who knows). She's persevering with the ferrous...
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