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Recent content by Gra

  1. Gra

    Crohns and Dental Health

    Visited my dentist today, and he tells me that my teeth are in such bad shape that I am likely to lose most or all of them soon. He has already booked me an appointment to take two out this Friday. Since being diagnosed with crohns I have lost a huge amount of weight, dropping from my...
  2. Gra

    Humira as a maintenance med (post surgery)

    On Wednesday I'm seeing my Gastroenterologist for follow up after my stoma reversal. Should I be asking to go back on Humira as a maintenance med?. My only symptom right now is a lot of loose bm's, but I am led to believe this is not unusual after stoma reversal while colon learns to process...
  3. Gra

    Gastro-Stop dosage

    I had surgery on 29 October to reverse my previous ostomy and reconnect my colon. Was discharged from hospital on November 4th, and the discharge nurse cautioned me about taking more than one gastro-stop (loperamide) a day after surgery. Since then have been taking one gastro-stop capsule in...
  4. Gra

    Surgery Tomorrow

    Going in for surgery again tomorrow (Oct 29th). I had an ileostomy done August 6th, this time is to get rid of the bag, and to reconnect my internal plumbing. It's supposed to be a much smaller op. than the last one, according to my surgeon. He says I will be out of hospital in a week, I'm...
  5. Gra

    Resuming work with stoma

    Last week I told my boss that I will be back at work starting Tuesday next week, initially for two days a week. Main driver for this is that I have used up all my paid sick leave. But starting to wonder how I am going to do this. One of my big worries is managing the stoma at work, and...
  6. Gra

    Diarrhoea with a stoma?

    It's nearly two months now since Li'l Stinky and I met, and I was just starting to feel a little more confident about our relationship. The output was starting to thicken up a bit (I am taking 8 Gastro Stop or Loperamide a day) and look a bit more "normal", and I thankfully haven’t had any...
  7. Gra

    Barrier wipe question

    Still learning when it comes to changing my stoma bag. Changed the bag this morning and forgot to use the barrier wipe. What does the wipe do? Does it play a role in making the bag stick? Or is it just to protect my skin? Worried my bag might come partly unstuck and leak....
  8. Gra

    Putting stoma bag on twice?

    Attention those with stoma experience - putting my bag on this morning i forgot the barrier wipe, and had started putting the bag over the stoma when I realised. Bag was just sticking partially at bottom and I lifted it off, did barrier wipe, dried it and then puth the bag on again. I'm now...
  9. Gra

    Working with a stoma?

    So, 4 weeks after surgery (Right hemicolectomy and ileostomy), second week at home, I am still really struggling with my stoma. True, my surgeon plans to reconnect my plumbing in 3 months time. But what do I do until then? This is a lot harder than I thought it was going to be. First, I am...
  10. Gra

    Dehydration

    I've read that Ostomates need to be wary of dehydration. I've found since getting home from hospital that sometimes when I urinate (like just now, woke in middle of night badly needing a piss) the urine seems "hot", or very strong. Almost feels like I am pissing razor blades. Could this be a...
  11. Gra

    New Ostomate

    Hi all, I just got out of hospital two days ago after having a Right Hemicolectomy and Ileostomy. As a result I have a temprary stoma. Here to learn about how to manage this beast - right now I'm not finding it much fun. Having trouble managing it at home with a nurse attending each day to...
  12. Gra

    Humira and tooth extraction, gum healing

    OK, so I broke a tooth this morning, went to dentist tonight. He said it has an infection in the gum and is not repairable, and extracted what was left of it. I know there are some issues with Humira and surgery, dentist said there were no contra-indications for Humira and extractions. It is...
  13. Gra

    Maintaining Humira Eligibility (Australia)

    So far I have had the initial 12 week trial of Humira, followed by my first assessment (which was good), and now I am nearing the end of my second Humira script (24 weeks/12 pens), and now have one pen remaining. I have an appointment to see my GI tomorrow to renew my eligibility for another 24...
  14. Gra

    Surgery Dilemma (long…)

    Surgery Dilemma (long…) Okay, first little background, I have Crohns, which has created inflammation in the last few feet of my small bowel. My gastroenterologist who put me onto Humira late last year, has continued to tell me that I need surgery, despite the fact that the Humira has now gotten...
  15. Gra

    How long does your shot Humira last?

    I've now been on Humira for about 8 months, one pen every two weeks. Over that time I've noticed that quite often as I'm coming up to the last one or two days before my next injection is due, I get increasing symptoms of gut pain and unformed bowel movements. It seems to me that the dosage is...
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