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Recent content by Grandma McB

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    Skyrizi

    I am turning 70 next month and have been dealing with Crohn's disease since I was 23 years old. A few years ago I started on Humira and it helped to turn my life around. Unfortunately it only lasted about 5 years for me. I was then put on Entivio which also worked well for me. That also only...
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    Skyrizi

    I am scheduled to have my first Skyrizi infusion on the 29th. A am a bit worried about this one. I am fighting a cold right now and hope to be over it by the 29th. I have been on Humira twice and Entyvio with no problems other than being tired. Any helpful information from anyone that has...
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    All Summer Long

    I am switching from Humira to Skyrizi soon. Paperwork is in process now. Have you started the Skyrizi yet? I was wondering if you have had any trouble or good results yet.
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    Stopping humira

    I am on Humira again but I have built up antibodies to it so will be switching to Skyrizi. Is there anyone on it yet? Doctor is in the process of getting it approved thru my insurance.
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    Going back to Humira

    Thank you! I hope it works also.
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    Going back to Humira

    I was on Entyvio for about 7 years then it quit working. Tried to go on to Stelara. Took about 4 months to find out that to get it for free since I am on medicare I have to meet a requirement of having paid 4% for the last year in out of pocket expenses which I didn't. I saw nothing that told...
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    Starting Stelara

    Well its been a long haul to get approval through Johnson & Johnson for Stelara. I started in August and just got the approval a couple of weeks ago. Now my problem is they are saying I have to have spent about $2200.00 in my out of pocket costs for prescriptions to get it. I am no where...
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    Medicare Coverage for Stelara

    I am on Medicare and also have United Health care plan. My plan covers Stelara but copay is $3,326. I applied for help thru Johnson and Johnson but have not heard back yet. What I do know is that J&J financial help only helps with the injections but not the loading dose by IV infusion. Is...
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    Starting Stelara

    Thank you! Glad to hear that this is working for you. At my worst time of Crohns my Doctor started me on Humira and it was a life saver until it quit working. Then I switched to Entyvio and it also worked for years until it stopped. Hoping that Stelara will work for me also!
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    Starting Stelara

    Thank you, I will check what dose is for my weight.
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    Starting Stelara

    I will be starting Stelara soon as Enytvio no longer is working for me. What was the amount of the med that is given in the first dose through infusion and what is the dose for the syringe. I will be on it every 8 weeks.
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    After Entyvio having abdominal pains and cramps

    Lisa I do believe it was just a coincidence now. I finally started feeling better by Sunday morning so I believe it was a partial blockage. I did call my doctor on Friday afternoon to let her know what was going on. Now on Monday morning I am just a little sore in the stomach muscles from the...
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    After Entyvio having abdominal pains and cramps

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    After Entyvio having abdominal pains and cramps

    I have been on Entyvio for 4 years now and have never had a reaction to it nor do I take anything before the infusion. Yesterday I had my infusion at noon and by 4 pm I was having cramping and pain and felt like I would like to throw up but didn't. I know I have a narrowing area where they...
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    Hair loss from Imuran?

    I have been on Imuran for years at 150mg. About a year ago my doctor put me up to 200mg. I have been experiencing hair loss since the increase. Has anyone else have this happen and what if anything was done about it? My doctor said that I need to stay at this level. I do have an appointment...
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