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Recent content by Guestly

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    Narrow escape...

    I woke up at 4am drenched in sweat and gave spent all day in the toilet sweating and pooping... Fortunately it was my 6 week check up at the hospital this afternoon. When I got init wasn't my usual GI, it was a member of his team, and she didn't know why I was there or what was wrong with me...
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    Scary Pred Munchies!!!

    Dear oh dear!!! I have barely eaten in about 4 months, existing on a diet of ensure and grilled fish... Been on the pred about five weeks, start the taper next week, and aside from manic cleaning and insomnia no other side effects... Until yesterday! I went to a church coffee morning with my...
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    Ensure for Grabs in Hertfordshire UK??

    Hey guys, A long shot I know, but I have ended up with about 20 odd bottles of Ensure in flavours I absolutely hate, blackcurrant, raspberry etc... I was just bagging it up to throw out when I thought hang on.... I do actually know loads of people with Crohn's... some of whom might need it AND...
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    Round and round we go!!!

    Hey Guys, Just an update really.... When I got out of hospital last month I was in a right state so I did snot and tears on my GP and my GI and came away on 30 mg steroids and with appts for an inflammation scan and ANOTHER colonoscopy. :( Started the roids, and then a week or so later had...
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    Anyone had Seizures on Pred?

    Hiya all, So, I am tapering pred, currently on 25mg per day tapering at 5mg per week, and apart from pain relief and nutritional supplements thats my only med currently. Friday - I was totally manic.... the house was spotless, meals were loaded up in the freezer and all the presents were...
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    DLA in UK - Anyone been approved?

    Hey Guys, I spoke to my GP yesterday and he is supporting me in a claim for disability living allowance. Just wondered if anyone else in the UK had applied and how they got on? I hear the application has to be rather an epic piece... Any advice gratefully received... Thanks pals Lishyloo
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    Hypnosis for Crohn's Disease

    Hey guys, I went for some hypnosis today to see if it can give me any help with the Crohn's. As many of you know from my persistent "over-sharing" offences on this forum, I have a lot of issues with public disgrace, and it strikes me that there must be an undercurrent of stress that...
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    Meh!

    meh! Pah! Ignore my previous post about being in remission and the whole world looking bright and rosy... since I got out of the hospital last Thursday I have continued to poop even more than before. Remission my butt!:poo: Imodium is the most rubbish treatment I have ever had to put up...
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    Lishyloo is poorly poo

    Hey pals, I am in hospital for my second day now, and its been tough. There are two AWFUL women on the ward who have been moaning all night - and they aren't even that sick... one of them is racist, the other is just ignorant... So I ended up here after I collapsed at work with agonising...
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    Prednisone thinning out my hair

    Friends, So, the heavy duty steroids have really thinned out my hair over the last 6 months... I have longish hair, and although it is fine, have always had loads of it, so it looked really thick and luscious... ok I am bragging, but my hair always was lovely. Now I am on the Mercaptopurine...
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    Yellow Belt

    Just wanted to share!!! I had my Judo grading today and I passed - I am 6th kyu - Yellow belt!! When I woke up I couldn't poo - quite refreshing actually, but when I was told it was five mins til I was up for grading I was able to poo LOADS!! BUT the main thing is I made it and I passed. I...
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    Does Azathiprine or Entocort cause bruising

    Very strange.... last night hubby and I noticed that I am covered in bruises... seriously I look like I have been beaten up... purple welts all over me, over my knuckles, elbows, shins, knees, thighs, even my butt!!! Anyone else have this? Could it be some of the meds? Been on Entocort for...
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    You couldn't make it up....

    So today we took the kids to a theme park. After a modest lunch of a piece of solitary chicken for me and delicious looking hot dogs with onions and stupid amounts of sauce for the rest of the family we decided to check out the maze! Typical then, that just when myself and youngest are totally...
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    Violent Vomiting??

    Hello lovely fellow Crohnies, just thought I'd ask if anyone else suffers with vomiting? Of course I am well used to the action at the other end of the digestive system, but things have taken a new turn for me, and I'm not sure if it's the Crohns or the Aza? Let me give you the gory details...
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    Pentasa Anyone?

    Hello lovely people, I have been on Entocort for 5 weeks now but as I wean off the raging shits have returned - bummer eh! TheEntocort took three weeks to take effect and then kicked in with a spectacular dose of constipation ... OK I admit, having to strain was rather refreshing after so...
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