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Recent content by Hayleymariex

  1. Hayleymariex

    Ostomy belts in UK?

    Hello everybody! Does anyone from the UK know where to purchase an ostomy belt? (I think that's what they're called, please correct me if I'm wrong.) I've checked fittleworths but they're not on there. Thanks everyone, hope you're all very well! :hug:
  2. Hayleymariex

    Bleeding along scar and small hole.

    Hello everyone! Quick question here as Joe has just presented me with some alarming news right in the middle of my revision (that darn Joe!). He's told me that this morning he woke up with a jelly like blood clot on his scar, and what looks like a small hole on it as well. Have any of you seen...
  3. Hayleymariex

    Suspected IBS, any info please?

    Well this is the first time I've posted in the undiagnosed section! As my boyfriend is the one with the diagnosed Crohn's I never thought I'd have the need to really lol! Lately I've been getting symptoms similar to those shown in less severe IBS, and I was wondering if any one could offer me...
  4. Hayleymariex

    What are the differences between IBS and Crohns?

    Hello everyone! Hope you're all keeping well, Joe and I have had an easy time for once, so I hope all of you have too! For once I'm not here to ask about anything for Joe, I'm asking for myself actually, which is strange for me. Recently I've opened up more to Joe about my "plumbing"...
  5. Hayleymariex

    Hypermobilty? Anyone?

    Has anyone on the forum ever suffered from hypermobility in their joints/ligaments? Me and Joe went to see a consultant about his experience with it and she said she thinks it's related to his crohns, but I've never heard of that. Has anyone had any experience at all with it? I don't see how it...
  6. Hayleymariex

    Will it ever get better?

    For the last year me and the boyfriend have been completely screwed over by the NHS. He had an abscess last January, which was diagnosed as a stricture (after he'd been down for the op. He was admitted for having an abscess.) After the ordeal of that it was smooth sailing. But (there will...
  7. Hayleymariex

    When anxiety comes alongside an op.

    Since finding out my boyfriends having his ileostomy reversed my anxiety has just been immense. I cannot think of anything worse, and even though I know I should be so happy I just can't be because of our experience this last summer (coma, sepsis, everything going wrong wrong wrong.) I feel so...
  8. Hayleymariex

    Can anyone explain a reversal procedure?

    I'm trying to do some research to calm my nerves for our upcoming reversal. Ended up watching a video, possibly the worst thing I have ever done to myself, it was basically self inflicted mental abuse. But I saw it through! And then I didn't understand. Because it didn't apply to our specific...
  9. Hayleymariex

    What are the risks of reversal in this case?

    So when Joe had his ileostomy there were a lot of complications. He originally had the inflamed portion of bowel removed, but the bowel didn't reconnect and so he got scepcis, this meant that when he had his ileostomy (10 days later) he was put in an induced coma. This all happened in July/June...
  10. Hayleymariex

    Anyone had experience with thinning bones?

    Hello everyone! I haven't been on for a long time, lack of internet and lots of college work to do (take btec law they said! It'll be easier they said! Ha!) Anyway, this isn't about me. Joe's getting better at caring for his stoma, and so am I, so we take turns to change the bags now. He went...
  11. Hayleymariex

    Just letting you all know.

    Hey everyone, just a little update on what's been happening with Joe since he woke up from the coma (damn doctors.) Finally, after a grand total of 8 weeks in the hospital Joe was released permanently! He has had visits from the stoma nurse every other day (Mondays, Wednesdays, and Fridays) but...
  12. Hayleymariex

    Books on Crohns?

    Hi everyone, been on a kindle kick again. What with Joe still recovering we can't really be up and about, but it's nice to be having quiet time with him. I've been after some new books to read and thought I'd have a look around to see if there's any books (preferably for young adults, nothing to...
  13. Hayleymariex

    Is this normal?

    Today some yellowy brown fluid was leaking from the bottom of Joe's operation wound. The nurse put a dressing over it and told the doctors who then came in to see us. They said it was because he's on a drip to rehydrate him, which was pumping out this fluid. Now, upon seeing the fluid, my heart...
  14. Hayleymariex

    Feeling useless.

    So my boyfriends had a stoma fitted, he's on a regular ward now and will most probably be discharged permanently next week. For the last few days I've been feeling useless, and almost like I'm being pushed out by some of his family. Yesterday there was a minor set back, and due to everything...
  15. Hayleymariex

    Stoma advice?

    Hello everyone! Posted a question on a thread in the stoma sub before, but i thought I'd better make my own in order to get all my questions answered. My boyfriend has had a colostomy, and an ileostomy so now he has 2 stomas. He's still in an induced coma right now, and so I haven't been to see...
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