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Recent content by Hera

  1. H

    Heard from Doc today

    This decision must have been a difficult one, so I hope the disease goes to sleep and she can live a life full of positive things and not constantly conditioned by an active disease.
  2. H

    Leves of Remicade. Change to 10mg/4weeks

    I have been taking infliximab since January 2021, I started with 5mg every 8 weeks. Soon I had to increase it to 5mg every 4 weeks. I have been on that dose for about 6 months but still had symptoms and quite inflammation (800 calpro). Doctors were very adamant about switching to stelara but I...
  3. H

    Skyrizi

    Do you know if is Stelara out of market or something? Any problem with Stelara or only insurance business ?
  4. H

    EMA backs restrictions on certain immune-regulating drugs

    :(
  5. H

    Colic pain

    Do you take any specific medication for colic/cramps. Colic with no diarrhea. Mornings are difficult, lot of pain.
  6. H

    Leves of Remicade. Change to 10mg/4weeks

    Doctor thinks it would be best to switch directly to Stelara. He hasn't talked about trying another anti-Tnf. My Crohn's is only in the colon. As far as I read Steleara works best in the small intestine, so I was surprised by that choice. If I go to Steleara, could I go afterwards with Humira...
  7. H

    Leves of Remicade. Change to 10mg/4weeks

    yes, I have daily abdominal pain and bleeding. I've been having these symptoms for a year and a half. I only felt well for short periods when adding predisone. It's maddening. If everything continues like this, I think I'll be a candidate for surgery, and the idea terrifies me.
  8. H

    Leves of Remicade. Change to 10mg/4weeks

    updating: By the moment I'm still on 5mg/4 weeks. calpro: 600. The plan is start to 10mg/4weeks on december. But i' ve just check my infliximab levels and they have changed a lot in the last measurement. they have gone from 13 to >20 in just 2 months. Usually my levels were close to 13...
  9. H

    VSL#3 probiotic. Opinions

    I see, so how is possible that I just bought it 1 month ago in a pharmacy with the name. lactiplus VSL#3?
  10. H

    not being breastfed as a baby could be related with risk of a developing IBD?

    I am being surprised seeing that some of you have more than one child with Crohn's. I thought they were more isolated cases. My brother was recently diagnosed with SIBO
  11. H

    not being breastfed as a baby could be related with risk of a developing IBD?

    So..It doesn't seem to have a relationship, contrary to what I have read in some studies.
  12. H

    Leves of Remicade. Change to 10mg/4weeks

    Yes. I think it's worth a try and not living with the doubt. Who determines what level each one needs? they really don't know. My ulcers are deep and probably difficult to heal, I currently weigh 39 kilos at the age of 36. So not very standard. I will write here about how it went.
  13. H

    VSL#3 probiotic. Opinions

    Third day with Vsl3. I notice less pain but more red blood. does it make any sense?
  14. H

    VSL#3 probiotic. Opinions

    I started yesterday with the first envelope, and my rutinary pain (during mornings) was reduced a lot. I guess it is a casuality because could be impossible to feel something with only 1 day. But we will see..
  15. H

    Leves of Remicade. Change to 10mg/4weeks

    My doctor is in favor of switching to another drug, but I asked him to try the last chance. The change scares me because if I change infliximab will no longer be among the possible options. (I only used it for 10 months). After all, each body is different. Maybe I need more levels than other...
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